Forum Discussion
Cate64
9 years agoMember
what to do??
Morning Girls, I am have one of 'those' days. SO close to tears & a complete meltdown. I have a rash all over my arms that is bright red & hot to touch & the Oncologist tells me its hand & foot syndr...
KimW
9 years agoMember
Hi,Cate64 said:Morning Girls, I am have one of 'those' days. SO close to tears & a complete meltdown.
I have a rash all over my arms that is bright red & hot to touch & the Oncologist tells me its hand & foot syndrome from Xeloda just not on my hands & feet. Why do they not listen when you talk??? I have had this rash since before Christmas, 3 months before I was put onto Xeloda.
I go in my tepid bath with either Pinetarsol or QV Oil in it every night to kick moisture into my skin, I have a tepid shower in the mornings & slather on the moisturizer afterwards.... Some days its better than others, today its bad, its hot to touch it itches like crazy. Im really at the end of my endurance today.
I just dont know what to do with myself.
Why dont they listen?? my skin has always been reactive & after 53 years I think I know what works & what doesnt.... they dont listen & so I get nowhere I just suffer, mostly in silence, till it becomes too much then I have a vent , on here...
Sorry Girls, just feel I need someone to listen to me...
Wish I had of seen your post earlier I would of replied much sooner. Has the oncologist actually seen the rash? Could it be ok brain fade what do you cal chicken pox when it comes back? that? oh gosh bad bad brain moment.
Go and see your GP and raise your concerns I've found they are immensely helpful at listening, sometimes oncologists are so fast to see you in and out it feels like you pay them for a 5min consult and get no where.
Was going to suggest pinetarsol or egoderm oatmeal bath soak which I used to use on my babies eczema rash, you can also buy body wash and soap bars in oatmeal.
hope you are feeling a bit better this evening
hugs xx