Hi everyone
First of all, the very fact you are talking about this issue here helps us to advocate even more strongly. I'd encourage anyone that wants to have a chat with me to give BCNA a call (1800 500 258 and ask for me or a member of the policy team) or email us at policy@bcna.org.au.
We always incorporate the words and experiences of women when making our formal advocacy submissions to governments. So the more we hear and read - such as this blog conversation - the better informed we are to argue our case.
The good news is that Cancer Australia has now been funded - 2.4 million dollars - to collect and report national data on the stage of cancer when diagnosed. Over the next four years we should see significant improvements to the collection and reporting of secondary breast cancer as a result. We regularly check in with Cancer Australia and have made our position very clear on the need for better secondary breast cancer data.
I really do encourage you to get in touch with us via our email address or phone if you have any questions or need more information from us. We try to follow the blog conversations as best we can, but we do not have access to conversations in private groups so we don't always see what you are saying. It is definitely much better to get in touch with us directly if you have a query or issue you want to raise. We always love to hear from you.
Nic
