Forum Discussion
Update on data collection on secondary breast cancer
Hi all,
A few weeks ago some of our members in the Online Network were discussing concerns about the fact that data is not routinely collected on secondary breast cancer, the way it is when women a...
So from reading all the previous comments and in particular the very first post a doctor only has to report EBC, do they just assume that anyone who ends up with ABC has already had EBC and so therefore is already on the list????
i was diagnosed March 2012 at aged 41 with ABC, never been diagnosed with any other form of cancer so I'm guessing that means I'm not on their list therefore I don't exist!!!!!!!!!
Its about time that we were recognised and included in the statistics so we can get the much needed funding to find a cure for us. Sure I feel sorry for those with EBC and what they go through but really they don't have a clue what we live with every day.