Forum Discussion

Michelle_Marven's avatar
Michelle_Marven
Member
14 years ago

Update on data collection on secondary breast cancer

Hi all, A few weeks ago some of our members in the Online Network were discussing concerns about the fact that data is not routinely collected on secondary breast cancer, the way it is when women a...
kato's avatar
kato
Member
12 years ago

I also posted last year regarding this. I do not have ABC but I think this information is essential. Our statistics are on 5 year survival which is fairly meaningless when so many of us are young parents. 

According to most American sites approx 30% of EBC will eventually progress but we need to know exactly. Skewed, feel-good statistics are no help towards reducing and acknowledging progression.