Forum Discussion
Update on data collection on secondary breast cancer
Hi all,
A few weeks ago some of our members in the Online Network were discussing concerns about the fact that data is not routinely collected on secondary breast cancer, the way it is when women a...
It would be also great to know what percentage of funding (both BCNA and NBCF) goes towards secondary education, support and research.
Within our support group, we have a couple of other points we'd like to get information on, and are having trouble getting.
1. What % of ABC patients suffer depression. We have stats for this for EBC, what are they for ABC?
2. What % of EBC patients will develop ABC over the course of their lives, and what's the average time to secondary diagnosis.
3. What % of patients present with mets at diagnosis?
No amount of investment in EBC research and preventative measures will keep us alive, so we need to first start collecting this data, if it's not already being collected, in order to know where to invest.