Thank you for providing info re data collection for secondary breast cancer in Australia. I am saddened and very disappointed that more than 12 months since your update, this data still doesnt exist. Young women with young families are dying, one by one due to ABC...we are forgotten about and not listened to.
In relation to the collection of secondary cancer statistics, the BCNA update above says that "current trials (in Victoria and WA) are due to finish in June 2013". Can we please have an update in relation to the progress of these trials? I urge BCNA to strongly advocate on our behalf to push this matter ahead, and report back to us on where things are at. Without decent statistics, services cannot be planned appropriately to meet our needs and funding will continue to be inadequate.
I agree with comments made above by Pink66 and in particular MandaMoo...we are living with ABC...we are here....we are not invisible....we deserve to be heard!
