Today’s Mood: cranky with a touch of psycho

I just saw this on Facey. And I think it’s what all of you lovely people have been trying to tell me. Cx

Thanks again @SoldierCrab. Ironically, 3.5 years later when I developed a new primary and did then have a mastectomy I was offered loads of support. I was quite bemused. When I was expected to die and immediately post-chemo I got ZERO support. When all I needed was a boob off and some radiotherapy I was suddenly offered counseling, a nurse, told about OTIS etc. Where the f*ck was all that when I actually needed it???? I don’t mean to sound ungrateful but the system is truly bizarre. The less sick you are, the more help you get? I did actually point that out to them in hospital and they sheepishly admitted that the service is a bit shit for stage 4 de novo but that they try to do it better now. I hope so for all the women coming through now. On the upside they obviously get quite a bit right as despite the grim prognosis 4 years ago I’m still lively enough to get quite feisty 😬

YOU are still entitled to a breast Care nurse .... !!!

ah being perfect ....... let me see I tried that once ..... nearly killed me and my kids were unhappy with the grouch from hell..... 

Stargirl did you get an inbox from me with the links to different things ? 

IF not I can redo it here. 

Thanks for all the info @SoldierCrab. I have not heard of Mummy’sWish. I don’t think most places deal with mets de novo very well. Because at initial diagnosis I was considered inoperable it was straight to chemo. No surgery and no radiation. That meant no breast care nurse, no information, no check ups with surgeon etc. other than ongoing Herceptin and Perjeta, after chemo I was pretty much on my own. I didn’t know what to do and hadn’t really told people, so I just went back to work and tried to carry on as normal. In fact, I increased my hours and tried to be supermum. Worst. Idea. Ever. Just about killed me. Having recently got a new cancer (because I am such an overachiever lol) I am trying to take a more measured approach, but it’s bloody hard. I can’t work anymore so I feel pretty useless. I just want to be perfect dammit! 

I can tell you my kids and I learnt the art of in really stressful times pre BC that I would let out this howling squeal and they knew it was a rumble /tumble time on the bed have a cuddle and giggle and maybe weather permitting off to the park to have a swing you know they are happy Young adults now who often bring up the fun times we had ... I learnt back then to survive I needed to chill out about having the perfect house.... I would put on a load of washing in the evening when they went to bed  throw it in the dryer and pull out fold and put away ready for the next day very little ironing and I got to spend the time with them.... 

I think  it is the hardest thing to cope when you are feeling exhausted most of the time. I'm lucky that I dont have any young children now. I dont know how young mothers do cope when you are feeling exhausted. The day after chemo , I  was feeling pretty good and got stuck into the ironing,  scrubbed the shower recess , did some gardening then the exhaustion really hit suddenly.  I was like a bear with a sore head, especially when my husband asked me what we were having for supper . So I guess the answer is to not over do it. Try to prioritize jobs with family members which can be very frustrating at times. Try to enjoy some time each day doing things we like to do. I am now 7 years since diagnosed with metastatic breast cancer and life goes on.

I did this @stargirl after hearing it was working in pubs and public toilets. I only had one child, so there was no doubt about who was pissing on the floor. A little bit of motivation seemed to help. This is a UK site, but you will find something OZ if you try.
https://www.amazon.co.uk/10-Fly-Target-Toilet-Stickers/dp/B00567WUEG

Check out the Otis Foundation too @StarGirl. It sounds like you could all do with a holiday.

http://www.otisfoundation.org.au

Thank you @kmakm. I desperately hope that’s true. And I am definitely going to try that.