sue_gan
11 years agoMember
Secondary
Hi All, I was diagnosed with IBC on 18/10/11.
Had the usual treatment, including Herceptin & Tamoxifen.
Was going well until I was diagnosed with brain mets on 20/6/14. I had a 3cm tumour removed ...
I'm so glad your doing well and have few symptoms. My prognosis, once the lesions were found on my meninges and spinal cord, was changed from years to months. I'm hoping that will be many many months but no one will give me a definite time. Did you have any side effects from radiotherapy?. I'm still virtually housebound with fatigue, nausea and weakness from the dexamethasone. It's been 3 weeks since WBRT finished. I would love my normal life back. Sue