I saw yesterday that Ribociclib is now available in Australia:https://www.9news.com.au/national/2017/11/02/18/13/breast-cancer-drug-ribociclib-australiaThis is a drug that is similar to palbociclib. Although it's not on the PBS either, I wonder whether the fact that there are now 2 options available from different companies that this will bring the cost down a bit. One can only hope!!Also I believe that ribociclib is available by Novartis through compassionate access for newly diagnosed women that have not been yet treated with chemotherapy for their metastatic breast cancer.

Does anyone know of any current petitions to get palbociclib and/or ribociclib on the PBS? I know BCNA had one last year but I'm not sure that's still active. I have many friends and family wanting to spread the word - we need to keep the pressure on!

Hi @scientist Just a further update. BCNA is launching a campaign re ribociclib and palbociclib in the next couple of days where we will be encouraging our members, their family members and friends to write to their local member of federal parliament and/or Senators to urge them to support the listing of the two CDK inhibitors on the PBS. I'll post the link on the network once it's up.

Hi tilly45Ive been on ribociclib for several months now (on compassionate grounds) and doing really well apart from neutropenia....i feel very blessed to be on it as they are having great results in the states with it.....cheersClaire

Hi there,Here is the link to an update regarding the PBAC application. Both drugs are being resubmitted to the PBAC meeting in March.

Yes @scientist I saw that news yesterday too - it would be great if competition between the two companies brings the price down. (And hopefully leads to PBS listings.) I believe the access scheme for ribociclib is (unfortunately) only for people who have had less than one month's treatment with letrozole or anastrozole following their MBC diagnosis (as well as no chemo).I'm grateful that BCNA is so active in advocating for PBS listings - let's hope that it happens soon!

Ribociclib now available in Australia

20 Replies

Marianne_BCNA
Member
8 years ago
Hi @scientist, we have let media know of the campaign and are continuing to work with them. I'll keep you all posted.
Tilly45
Member
8 years ago
Great ideas. I have been emailing too
scientist
Member
8 years ago
I have been spreading the word far and wide today! Social media, friends and family... have already shot off some emails, and will be printing off a bunch of letters soon.

Are there any plans for a media release for this campaign? Any newspaper articles or a spot on the Project perhaps?!
Marianne_BCNA
Member
8 years ago
Hi all,
Here is the link to BCNA's post on our website regarding BCNA's campaign to have ribociclib and palbociclib listed on the PBS. It provides all the info you need to write to your local members so please take a look and get your family and friends to too!
Cheers
Marianne
wendy55
Member
8 years ago
thanks @Marianne_BCNA, lets hope we can achieve something this time around, look forward to getting the link.

Wendy55
Marianne_BCNA
Member
8 years ago
Hi @scientist
Just a further update. BCNA is launching a campaign re ribociclib and palbociclib in the next couple of days where we will be encouraging our members, their family members and friends to write to their local member of federal parliament and/or Senators to urge them to support the listing of the two CDK inhibitors on the PBS. I'll post the link on the network once it's up.
Marianne_BCNA
Member
8 years ago
Hi there,
Here is the link to an update regarding the PBAC application. Both drugs are being resubmitted to the PBAC meeting in March.
primek
Member
8 years ago
@BCNA
scientist
Member
8 years ago
Does anyone know of any current petitions to get palbociclib and/or ribociclib on the PBS? I know BCNA had one last year but I'm not sure that's still active. I have many friends and family wanting to spread the word - we need to keep the pressure on!
Tilly45
Member
8 years ago
That's great, how are you feeling on it?