Hi Francesca
Completely agree with you about collection of data on secondary breast cancer. Sorry if the way I wrote about it gave a different impression. As you know Australia has great registry data but does not routinely collect data on advanced cancer. Some of the countries at the concerned don't even have cancer registries. Which was the point I was trying to make.
We have been advocating for some time to have data collection on secondary breast cancer. Cancer Australia is currently undertaking a pilot study on the best way to collect data on secondary disease. It is so important as we don't even know how many women are living with secondary disease. I really wish you did not feel like you are the ''ugly sisters'. It is certainly not the way we think about women with secondary breast cancer.
Will keep everyone updated on Cancer Australia trial. Best wishes, Maxine
