Saw the Radiation Oncologist today. She feel that the radiation will help. Have staging on Thursday then I’m to have 5 zaps over 5 days. It could take up to 4 weeks to know what the full benefit will be. Its worth a tryreay liked this rad oncologists the last one had no bedside manner at all. Didn’t explain anything. And didn’t believe i had mets said it was all arthritis that was 2 and half years ago glad my main oncologist didn’t believe him. And started treatment for the lesions immediately. I know the radiation is not going to cure the mets but it will hopefully help with the pain. And if the Ibrance along with Armidex works to slow down the growth of the lesions and not get anymore I’m in for the long haul

Well done,in this day and age it seems impossible to believe that a radiation oncologist would think it was arthritis,please let me know how you go, I had one zap of radiation about 5 years ago on my back and it has worked up until now,will be talking to my oncologist about if I can haver any more for pain relief,or the pain could just be the result of the new chemo side effects, we will see,so pleased to hear you are here for the long haul, so am I!!!!wendy55

Ive been head caged and body packed into place, positioned and some extra tattoosthe original ones were still in the right spot just needed some morenow just waiting for my zap datesfrom what I understand I’m not to move at all. Also waiting on a call back regarding a couple of questions re meds etc also i have been told it does have a certain additional level of pain. If this works as well as they hope it will be life changing heres hoping. Its worth the try though there's no guarantee just hope

@Locksley i have been using the cream they sent home with me. I hope the blistering is finished. Im getting to the itchy stage. Im being good and not scratching the one on my chest but the one on my spine not so good at leaving alone. Though it does let me know when I do try to scratch@arpie yes i got some work sent home. Got through it in a dayso now I’ve started to make christmas gifts to put away getting ahead so I’m not leaving it to the last minute

Good on you for chasing it down ... and I am SO glad you get on well with your Rad Onc - it really is SO important to get on well with your medicos .... as you'll feel more comfortable raising ANY question with them, without fear of being ignored or belittled.Fingers crossed it does the trick, straight up xx. Definitely let us know how you go xxI hope you can have another zap too @wendy55 xx

It’s on1st radiation Happy Valentines 😆. On MondayMedial Oncologist yesterday. Great news. Instead of my bloods levels steadying before going down it dropped by 30%. Needless to say Dr was wrapped and so was I whites came back to an acceptance level. Whatever that meanspain meds upped and to stay on the Slow release till after Radiation is finished and done it’s job. When I arrive at clinic I’m to take an Endone before they start, apparently it's going to take 30 minutes to set me up Onward and upward I have never felt quite so positive with things for a long time. My kids are cheering

Radiation On Lesion | BCNA Online Network

cranky_granny
Member
4 years ago
@Locksley i have been using the cream they sent home with me. I hope the blistering is finished. Im getting to the itchy stage. Im being good and not scratching the one on my chest but the one on my spine not so good at leaving alone. Though it does let me know when I do try to scratch
@arpie yes i got some work sent home. Got through it in a day
so now I’ve started to make christmas gifts to put away getting ahead so I’m not leaving it to the last minute
arpie
Member
4 years ago
How are you pulling up @cranky_granny ... I hope all is going good?

Did they send your required documents home so you can work from home? I hope so! Xx
Locksley
Member
4 years ago
Congratulations @cranky_granny on getting through your rads. Looks like you have half a costume for fencing ready.

I found dermeze very very good for my radiation burns. Hope all goes well with your healing.
arpie
Member
4 years ago
Well done @cranky_granny ... congratulations on getting thru your rads ..... I hope that you don't peel too much and that everything settles down nicely & your pain & discomfort is diminished! xxx

take care xx
cranky_granny
Member
4 years ago
Radiation all finished bought home my cage this was only used for the rib lesion I’ve
started to get a real good toastie brown sadly the blistering has started to show but hey got a free tube of cream
the one on the sacrum is nice and pink ( had to get my daughter to check as I can’t see it). I know its warm.
Now just waiting waiting waiting for it to do its job.
Apparently I’m excellent at staying perfectly still.
cranky_granny
Member
4 years ago
@arpie thanks I’m feeling better this morning still a bit of pain but The pain meds just needed to start working
arpie
Member
4 years ago
Oh gosh, @cranky_granny - I am so sorry your level of pain & discomfort has increased ...is there anything you can take to mitigate it?

Be very careful re the dizziness - you sure don't want a fall at this point in time xx

Is there any way your office can send you the documents you need for the BAS's - so you can work at home? I would imagine driving to work will be very painful. :( Sitting on an office chair wouldn't help your sacrum area either! :(

take care, ask your Onc about pain management (cos what you're already on may not cover it fully.)

take care - our thoughts are with you xx
cranky_granny
Member
4 years ago
Im past halfway had 2 Zapps on each lesion. The rib one is just warm and feels thick if that makes sense.
The one on my sacrum thats a different story. The treatment has made it hurt more than prior to radiation and the nerve pain down my leg and in my foot worse as well
the dizziness has gone up a level along with tiredness
all i can say is, this has to work.
Only 2 more Zapp's to go.
i have only 1 more week off work. It was bad timing with BAS’s due this week but this is more important.
cranky_granny
Member
4 years ago
@arpie
it felt a bit pin prick warm and like a pressed feeling on the rib. I came home with a good headache. I must have been tense when they clamped my head and shoulder’s down in the cage my jaw was locked and hurting when they lifted it off, next time i will breath out when it goes on.
They did the rib today the S1 Spine on Wednesday then Thursday rib again Friday spine. Next Monday rib, tues spine. And that should be it.
I’ll keep you posted
its Called Image Guided Radiation Therepy. IGRT.
There are some other abbreviations on my schedule sheet but not sure what they mean. I’ll find out soon enough.
arpie
Member
4 years ago
Hope it wasn't too claustrophobic for you xx. How long before you are expected to 'feel the difference'?