Question for wise ones!!

Thanks all for your wise words, I'm not sure if I made it clear enough but I scored the control arm of the trial so am not on the actual trial drug - I'm on the standard treatment so there is a little bit of the feeling "jibbed" part too. It is also messing around massively with my skin - I suffer from severe eczema and am under a dermatologist for that - also have to fit in UV treatment 2-3 times per week for my eczema. I cannot do any more than I'm already doing for my skin and risk is, if I have a flare up, I end up with cellulitis in my arm from lymph node removal and usually end up in hospital for a week to 10 days so it's not just a simple matter of "dealing with it" and putting up with it per se.  Already on lifetime antibiotics for that and being closely monitored by infectious diseases team for the ongoing cellulitis issues!  So it's A LOT!!!!!  Will book in another appt with psych to chat through but just wanted to hear from others like I said. I appreciate everyone taking the time to respond xoxox