Hi @ktre @Traci I’m on a break from palbo at the moment. Just one round. Giving the body a break and reset Go back on on the 7th May. Ive been stable now for 6 months. Energy levels were too low. It was affecting my work and everything else
i have done the morning meds and went back to nights. Reduced my workload to 2 days but couldn’t live off so little money. So back on 3 days. The extra day coupled with the horrible drive to work doesn’t help with my energy level 2 of the days im drained before i start
my brain scan came back clear also.
My lesions are on my sternum, rib and sacrum found small spots in 2019. Watched closely when the markers went up and they continued to increase in size in 2020 I got the AI switched that didn’t work so switched back and added in the palbo. The markers stopped going up but didn’t come down so i sent for targeted radiation on the rib and sacrum this seems to have worked alongside the meds took 6 months but so far so good markers are right down and no additional growth or activity for 9 months
The various side affects of this combination is mostly tolerable. Headache, bone ache, nausea, and the lethargy is probably the worst part. When the grandkids ask me to play ball games I nearly cry its just impossible. As they’re getting older they are more understanding.
The pain from the lesion on my spine never goes away ( pressing on the sciatic nerve)
I’m thankful that I so far am not progressing to the next stage of treatment.
I live to enjoy another day with my rather large family.