Forum Discussion
I think mets patients are treated like second class citizens. I had to fight for a mets nurse. My treating hospital have breast care nurses but they only support stage 1 to 3. Wtf. That's actually discrimination.
I have been advocating for metastatic nurses at this hospiral. I met with their executive and finally to cut a long story short, they are currently having their breast care nurses do the mcgarth training.
This should not happen. I am sick. I needed help. I found my own mets nurses and i am thankful for that but i dont want other mets patients to go through this.
When a person with mbc finds out about progression it is so traumatic. It's like a complete restructure to ones life, everything changes for you, the treatment, the side effects, tge treatment cycle etc. Plans get changed and everyones life in the home is changed too. It's enormous change for everyone.
Support for all with metastatic disease is critical. It is hard enough and very lonely but support helps.
That's abdolutely disgusting, Cath62 that the BC nurses would not be there for Mets patients as well as Stages 1-3! UNBELIEVABLE, actually! And TOTALLY dismissive 😟
It is critical to have GOOD support for all with BC - but especially those with Mets.
Well done for advocating for the future Mets patients, Cath - it would take a toll on you xx
I hope you are going OK xx Take care, my friend xx