Forum Discussion
Marci
10 years agoMember
Newbie to this site
Hi everyone my name is Marcela I am 44 years old and was diagnosed last year October the 1st with Her2 positive metastatic BC. The cancer has spread to my liver and bones (spine, pelvis and some on my ribs). This was my initial diagnosis. So as you all know just getting a diagnosis of BC is traumatising enough but to be told it has spread and that there is no cure was devastating for me and my family. I felt like I was dreaming when the doctor was talking to my husband and I in her surgery that day, because there is no-one in my family with BC. My words to the doctor were- just cut them off! as I didn't know a single thing about BC let alone Her2+ or that it was too late because of the spread. I have always been healthy and into exercise and since receiving my diagnosis I have devoted myself to an anti cancer diet and way of life. I try hard to stay as healthy as possible to live as long as I can with this, to hopefully miraculously go into remission.... or stay around long enough for new treatments or hopefully a cure for us all!
When I was waiting to start treatment within that week in October last year the cancer fractured my spine. All I was doing was getting up from being seated on the lounge! The pain was excruciating and I have had children naturally so thats saying something! They had to give me so much pain medicine just to have me put my legs down to have me go through the CT machine. Every time they moved me the pain was through the roof, even with all the meds. They warned my husband that I may not walk again.....they eventually got me through the CT machine and they recommended to my husband that I have radiation on my spine. I was in no condition to make decisions because of the amount of meds to control the pain. I had the radiation and recovered in hospital for 3 weeks. In those 3 weeks I walked! And since then I have come a long way. They give me a bone strengthening injection with my treatment to prevent further fractures. I had chemo for 5 months along with Herceptin and Perjeta. I am currently having a break from chemo but I am on Herceptin and Perjeta as long as they continue to work.
I would have to stay one of the hardest things through this is the mental turmoil. As you all know we have our good days and bad days. I guess being faced with your mortality is something that people who have cancer or have had cancer know all about to well. I previously had my own business and worked very hard. Since being diagnosed I gave that all away and focus solely on living! I focus on my family and my health. I guess my cancer diagnosis really gave me a wake up call and made me realise what is important for me. Take you for reading my story ladies, I wish you all the best of health. See you all here soon! :)
17 Replies
- MarciMember
Will do, thank you Brenda.
- MarciMember
Thank you very much Karen.
- MarciMember
Thank you very much Cath.xo
- MarciMember
Thank you Andij. I will have a look at the book and websites you mentioned. Anything to help will be great! xo
- socodaMember
Oh Marcela, I'm so sorry to hear that you have lost your mum and that she passed away on your birthday, that must have added yet another layer of heartache to both you and your family. I hope that on your future birthdays you are able to celebrate both your birthday and your mums life with wonderful festive activities. I met the lady I mentioned previously on the day I was being discharged from hospital from having my mastectomy. She was truly inspirational, caring, sharing and wonderfully happy and she was a total bonus to my day :-). I'm sure she would be very pleased to know her continued success has helped. Xx Cath
- Brenda5Member
That's great news to hear how far you have come Marci. Gee that is amazing you can walk now. Keep us posted on your further treatment as my dad has bone cancer too but he gets muddled with what injections and pills are for what in his treatment. I am sure one of them must be that bone strengthening one you get.
Wha a brave strong person you are. You are coping wonderfully well with a very sad diagnosis and huge amounts of pain. And the sudden loss of your mother. I hope things go better soon. I hope your family and friends give you lots of love and support. Best wishes Karen
- AndijMember
Hi Marcela,
Yes it is a shock when we find out we have breast cancer. It doesn't seem to make any difference whether it is caught really early or stage lV. But the shock being told you have stage lV must be just horrendous. You are certainly on a pretty tough journey. A healthy diet is such a good decision to make. Have you heard of Michael Gregor - Just fantastic information on diet and all proven information no rubbish. Also a book/ website called Radical Remission Kelly Turner) is wonderful as well - Heaps of hopeful stories of people that have had Stage lV cancers. A huge thing that we all need is hope and hearing stories of people in the same situation as you give you that:)
I am reaching out into cyber space to give you a huge hug. xo
- Dany1Member
Totally... I love champagne too.... and french rose. !@! xx
- MarciMember
Thank you very much Cath! I really need to hear stories like the one you just mentioned. There are days where it all just becomes to much for me. I have also had other obstacles come my way of recent that I didn't mention in my blog.... Not long after I finished chemo (for now) I lost my mum. It was sudden and unexpected. She also passed away on my birthday.....My luck of late has been terrible. Thank you for the positive story you posted for me, it means a lot. Xo