New to the Team- not exactly happy about it

I am so sorry to see you joining us here, CocoBean71​ - specially with your MBC diagnosis straight up.  :(  That is a huge shock to the system  xx.  ANY BC diagnosis mucks with your brain -  Oh gosh - don't empty your house too much!!  You need to have your bits around you, to comfort & support you xx

Make sure you have a trusted friend or family member for your follow up to today's PET scan xx.  The extra set of ears will help & also the physical support as well xx. I'd suggest you also record your appts from now on too - to go over them at home, as it is impossible to remember everything that is said, at the time xx

Absolutely - they are SO MUCH BETTER at treating MBC these days - that it is almost considered similar to some 'chronic' diseases with the use of specific meds and immunotherapy ..... l have friends who are 8-10+ years into their MBC & Prostate diagnoses and they are living full & productive lives xx. Sending you big hugs xx.  

I hope your BCN gets back to you asap?  They should become the first person to put your questions to (as well as the Mets group here xx) ... also - please ring our own Helpline, 1800500258, for a personal one-on-one chat xx

Please consider joining the Metastatic Private group,
Group: Living with metastatic breast cancer | BCNA Online Network
where you can chat with others with the same diagnosis - and also the ILC Private group too, as ILC is different to the 'normal' BC diagnoses.
Group: Invasive Lobular Cancer (ILC) | BCNA Online Network

In the mean time, try & keep yourself as busy as you can in between appts & treatment, doing stuff that you LOVE doing. xx It helps shift the brain away from the 'what ifs'!  Stay away from Dr Google .... most of what you look at isn't relevant to your own diagnosis - so please don't go down those rabbit holes! xx

take care and all the best for your ongoing appointments xx.  Keep updating us here, so we can help support you xx