Forum Discussion
Sam09
8 years agoMember
Hi kim
Thank you for posting this wow you have helped me enormously!! I was diagnosed in April last year and again in Dec with liver mets 12 inoperable shock horror..... I am currently on herceptin and perjeta indefinately.... I just have to ask is that your hair as since having taxol only one infusion and then being on herceptin and perjeta my thick glossy hair is super thin and fuzzy and horrible. My onc refuses to believe it is the drugs but it certainly is......... I had a thick mane of hair.
But its so wonderful that time is on your side and this encourages me. I have bad days and good. I feel well and energetic mostly and so happy and try to forget about it but then sometimes when I for some reason do not feel well then I have a dark low day and so on..... Do you have any side effects at all? I have a horrible burning itch constantly and at night it wakes me all the time it is depressing. Nothing alleviates it at all... I spend most of my time in baths and applying creams that don't work. Please tell me how your tumor markers have been all along?? up and down or just down... I also got told yesterday I am quite yellow. I havent really noticed it because I have very olive skin however when I looked down at her arm next to mine taking blood I most certainly did look quite yellow . Another worry....
But thanks for posting it has made me for one feel a whole lot better about this horrible disease......and the future.
Thank you for posting this wow you have helped me enormously!! I was diagnosed in April last year and again in Dec with liver mets 12 inoperable shock horror..... I am currently on herceptin and perjeta indefinately.... I just have to ask is that your hair as since having taxol only one infusion and then being on herceptin and perjeta my thick glossy hair is super thin and fuzzy and horrible. My onc refuses to believe it is the drugs but it certainly is......... I had a thick mane of hair.
But its so wonderful that time is on your side and this encourages me. I have bad days and good. I feel well and energetic mostly and so happy and try to forget about it but then sometimes when I for some reason do not feel well then I have a dark low day and so on..... Do you have any side effects at all? I have a horrible burning itch constantly and at night it wakes me all the time it is depressing. Nothing alleviates it at all... I spend most of my time in baths and applying creams that don't work. Please tell me how your tumor markers have been all along?? up and down or just down... I also got told yesterday I am quite yellow. I havent really noticed it because I have very olive skin however when I looked down at her arm next to mine taking blood I most certainly did look quite yellow . Another worry....
But thanks for posting it has made me for one feel a whole lot better about this horrible disease......and the future.