My story
Whilst being scanned for Spondolythesis, they told me there was an issue with "other bones"? My GP rang me next day & insisted I see him immediately with my husband. Bit scary thinking spondolythes...
Forum Discussion
Always good to have something special to look forward to.
I too have bone mets. Diagnosed with secondaries just over two years ago. Have tried all hormone tablets, no success, radiation and also samarium injection. Have monthly bone strengthening injections.
I have just commenced my second cycle of Xeloda and am hoping for a reduction or at least plateau of markers.
I must say I have experienced similar comments as you mentioned in your original post. I ran into someone at a shopping centre I hadn't seen for some time who passed the comment "so stories of your demise have been greatly exaggerated"
People have no idea of what is going on inside and just because I haven't lost my hair etc. this time doesn't mean I am recovered.
Breast Cancer in UK have a secondary breast cancer awareness day on 4th April which I think is great to increase awareness of secondary illness.
Good luck with the wedding, hope it all goes well!!!