I received good news Friday, there is not much change with my CT & my Ca.15.3 went down from 223 to 209. So I'm going back on the Afinitor & no chemo. I started taking it again yesterday and had the usual feeling that my head was in a vice. It feels ok today. I have two more doses of radiation then done with that.
I have been on Tamoxifin, Aremedex, they probably lasted around 4 years. Previous to that I'd had chemotherapy and Herceptin. You're not being a sticky beak by the way. Always good to have a chat.
My husband & I are working on getting away from Victorias cold weather & heading to WA for 2 months in our new caravan. He has Smouldering Multiple Myoloma & his onc would like him to see a heomotologist. We are trying to talk him into letting him go for 2 months then dealing with it as soon as we get home.
Hope I've been able to help you. Don't hesitate to ask more questions if you need too. I've written a blog with my regime of treatment in it. Cheers Annette