Forum Discussion
Sajani
6 years agoMember
Long Term side effects of Xeloda
I have been on Xeloda since November 2014. My oncologist wants me to consider stopping it as they don't know the long term effects of this drug and to start taking taking hormone tablets. I was firs...
Southgirl
6 years agoMember
You have certainly done well on Xeloda @Sajani - I didn't realise there could be long-term problems. I have been on Xeloda for one year, it is keeping things stable - and, like you, I have been fortunate to not have too many side effects. So I'm hoping to stay on Xeloda as long as possible. My Stage 4 diagnosis was 2016, and prior to Xeloda I was on hormone therapy (Femara, then Aromasin, then Aromasin/Afinitor), which stopped working after a couple of years. But my oncologist has suggested that we will probably try hormone treatment again (probably with a CDK inhibitor) if the Xeloda becomes ineffective. I guess you have to be guided by your oncologist's advice - please keep us posted. Sorry I can't be more helpful, hopefully there may be someone on this forum who has faced the same problem with long-term Xeloda.