Forum Discussion
Sam09
8 years agoMember
Long term herceptin only anyone ? Need some advice from experience please
Hi ladies I am 12 months into herceptin and perjeta 3 weekly infusions and suffering terribly with insane burning and itching of my arms neck and shoulders. So much my life and most of the night is ...
Sam09
8 years agoMember
Hi ladies
Thank you for your comments and coffee I commiserate with you for i too itch like crazy at night. Last treatment day I stopped the perjeta 20 mins into it and hoped it would help but to no avail to my dismay it is worse than ever and straight after treatment which is not the norm it is normally worse the last 10 days before treatment it is unbearable. I am still battling with the decision to drop it and hope the herceptin works alone after all Dr sloman and genetech invented it way before perjeta came into it and the results set the benchmark high. There are no long term safety results or studies yet for perjeta so that sways my decision quite a lot .........Pam wow that' is fantastic has it put you ned?
Thank you for your comments and coffee I commiserate with you for i too itch like crazy at night. Last treatment day I stopped the perjeta 20 mins into it and hoped it would help but to no avail to my dismay it is worse than ever and straight after treatment which is not the norm it is normally worse the last 10 days before treatment it is unbearable. I am still battling with the decision to drop it and hope the herceptin works alone after all Dr sloman and genetech invented it way before perjeta came into it and the results set the benchmark high. There are no long term safety results or studies yet for perjeta so that sways my decision quite a lot .........Pam wow that' is fantastic has it put you ned?