The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor. 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- I did post in private group last night but no response so thought I'd try here as well. :-) Hi there all, Strange question for you all for a Sunday night - I'm on my 13th round of Ki...","body@stringLength":"1629","rawBody":"FYI - I did post in private group last night but no response so thought I'd try here as well. :-)
Hi there all,
Strange question for you all for a Sunday night - I'm on my 13th round of Kisqali, still on 3 tablets which is highest dose. I'm taking in combination with Letrozole and the bone strengthening injection every 2-3 months. I'm doing really well on this treatment combo and apart from ridiculously disgusting dry feet that are revolting and foot pain, nausea and tiredness, I can't complain too much!! Recent PET scan has shown that my bone mets are still present but not active according to oncologist which is amazing news apparently.
My question is, I think my hair is thinning out and I have a \"sore head\". Only way to describe it is it feels as though my hair has been up in a \"tight ponytail\" and scalp is sensitive. Of course, I will check with oncology nurse tomorrow but thought others might have similar experience that they could share. Can't ask anyone at home to check for bald patches as single mum here and don't want to freak my kids out totally - I think that was the hardest part of my original cancer journey for them when I shaved my head as it was all falling out from chemo.
Other question for musing this late on a sunday night is, are there others in this group on Kisqali or Ribociclib combo that have been told they are doing really well - I can't seem to shake the feeling that the PET scan got it wrong!!
Thanks in advance ","kudosSumWeight":2,"postTime":"2020-01-12T23:38:12.000-08:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:hair-loss","text":"hair-loss","time":"2025-03-25T05:01:43.099-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDI","node":{"__typename":"Tag","id":"tag:kisquali","text":"kisquali","time":"2025-03-25T05:02:18.345-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDM","node":{"__typename":"Tag","id":"tag:side-effects","text":"side-effects","time":"2025-03-25T05:01:42.742-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":2,"currentRevision":{"__ref":"Revision:revision:56685_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":2943},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"customFields":[],"body":"FYI - I did post in private group last night but no response so thought I'd try here as well. :-)
Hi there all,
Strange question for you all for a Sunday night - I'm on my 13th round of Kisqali, still on 3 tablets which is highest dose. I'm taking in combination with Letrozole and the bone strengthening injection every 2-3 months. I'm doing really well on this treatment combo and apart from ridiculously disgusting dry feet that are revolting and foot pain, nausea and tiredness, I can't complain too much!! Recent PET scan has shown that my bone mets are still present but not active according to oncologist which is amazing news apparently.
My question is, I think my hair is thinning out and I have a \"sore head\". Only way to describe it is it feels as though my hair has been up in a \"tight ponytail\" and scalp is sensitive. Of course, I will check with oncology nurse tomorrow but thought others might have similar experience that they could share. Can't ask anyone at home to check for bald patches as single mum here and don't want to freak my kids out totally - I think that was the hardest part of my original cancer journey for them when I shaved my head as it was all falling out from chemo.
Other question for musing this late on a sunday night is, are there others in this group on Kisqali or Ribociclib combo that have been told they are doing really well - I can't seem to shake the feeling that the PET scan got it wrong!!
Thanks in advance "},"Conversation:conversation:56685":{"__typename":"Conversation","id":"conversation:56685","solved":false,"topic":{"__ref":"ForumTopicMessage:message:56685"},"lastPostingActivityTime":"2023-06-18T19:11:51.000-07:00","lastPostTime":"2023-06-18T19:11:51.000-07:00","unreadReplyCount":33,"isSubscribed":false},"ModerationData:moderation_data:56685":{"__typename":"ModerationData","id":"moderation_data:56685","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:56685_1":{"__typename":"Revision","id":"revision:56685_1","lastEditTime":"2020-01-12T23:38:12.000-08:00"},"ForumReplyMessage:message:56710":{"__typename":"ForumReplyMessage","id":"message:56710","conversation":{"__ref":"Conversation:conversation:56685"},"author":{"__ref":"User:user:1300"},"revisionNum":1,"uid":56710,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:living-with-metastatic-breast-cancer"},"subject":"Re: Kisquali","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:56710"},"parent":{"__ref":"ForumTopicMessage:message:56685"},"body":"I would be so pleased to hear from anyone dealing with hair loss. I am having Fulvestrant injections along with Kisquali. This is now my second time around and at the age of eighty three just feel can I deal with one more thing after thirty five years of mamograms,lumpectomy breast removal later, cancer now in my spine causing drop foot. I just want to keep what hair I have and just live with some dignity. I would appreciate any little clues that might help.","body@stringLength":"467","rawBody":"I would be so pleased to hear from anyone dealing with hair loss. I am having Fulvestrant injections along with Kisquali. This is now my second time around and at the age of eighty three just feel can I deal with one more thing after thirty five years of mamograms,lumpectomy breast removal later, cancer now in my spine causing drop foot. I just want to keep what hair I have and just live with some dignity. I would appreciate any little clues that might help.","kudosSumWeight":0,"repliesCount":0,"postTime":"2023-04-20T02:30:45.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:56710_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":1},"visibilityScope":"PUBLIC","isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[],"replies":{"__typename":"MessageConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"CachedAsset:theme:customTheme1-1743643394041":{"__typename":"CachedAsset","id":"theme:customTheme1-1743643394041","value":{"id":"customTheme1","animation":{"fast":"150ms","normal":"250ms","slow":"500ms","slowest":"750ms","function":"cubic-bezier(0.07, 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First chemo TCH","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:33640"},"body":"Hi Liana- I am about to have no 5 of 6 TCH next week. After no 4 I bounced back really well but after no 3 I was terrible. What I do know works is movicol the day before chemo and day of and after. Get extra nausea tablets to take besides dexamethasone. They gave me Pramin and I took it for 5 days after. Nausea went away. Drink more water than you would normally for first 3 days. Exercise- it makes a difference. I have had nasal bleeds that I am keeping under control with saline sprays and Vaseline. Ask for sleeping tablets so you can sleep whilst on Dexa otherwise insomnia will kick in. You only need to take for 3 nights. I too had the allergic reaction to Docetaxel. You will be given hydrocortisone every treatment before chemo. Be religious with your skin, nails and mouth. I used baking soda as mouth wash. I haven't had mouth ulcers. I used nail strengther every day. Lathered my skin with sorbolene. Massage my scalp with oil twice a day. Carried hand cream and lip balm. So far it has made a difference. Luckily I haven't had fatigue or bone aches. The first three days after chemo are always awful. Flu like symptoms are common. Make Panadol your friend as my nurses tell me. It works. Be kind to yourself and good luck!
Lyn xx","body@stringLength":"1399","rawBody":"Hi Liana- I am about to have no 5 of 6 TCH next week. After no 4 I bounced back really well but after no 3 I was terrible. What I do know works is movicol the day before chemo and day of and after. Get extra nausea tablets to take besides dexamethasone. They gave me Pramin and I took it for 5 days after. Nausea went away. Drink more water than you would normally for first 3 days. Exercise- it makes a difference. I have had nasal bleeds that I am keeping under control with saline sprays and Vaseline. Ask for sleeping tablets so you can sleep whilst on Dexa otherwise insomnia will kick in. You only need to take for 3 nights. I too had the allergic reaction to Docetaxel. You will be given hydrocortisone every treatment before chemo. Be religious with your skin, nails and mouth. I used baking soda as mouth wash. I haven't had mouth ulcers. I used nail strengther every day. Lathered my skin with sorbolene. Massage my scalp with oil twice a day. Carried hand cream and lip balm. So far it has made a difference. Luckily I haven't had fatigue or bone aches. The first three days after chemo are always awful. Flu like symptoms are common. Make Panadol your friend as my nurses tell me. It works. Be kind to yourself and good luck!
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