Is anyone taking Ibrance/Palbociclib?
Hi everyone, I had an appointment with my OC this week and he has suggested taking Palbociclib + Letrozole if I can afford it until it gets on the PBS. He says it's most effective as a first line tr...
Forum Discussion
Hi Wendy, thanks for your comment.
I have been to the media and had some press releases about the cost and unavailability of palbo, and have had some good replies from our Federal and local MPs, but it's frustrating that the drug is there but not available to everyone. My mets are in the ribs, spine and sternum.
I have stopped taking Letrozole on the oncologist's advice in order to stay 'newly diagnosed' so am only on painkillers at this stage. I will have to look into it a bit more this week. I do have a Breast Care Nurse who is lovely, but here in rural areas she is only up in this area one day per week with a lot of people to speak to, so I don't like to bother her too much.
Also, I am originally from the UK so have looked into whether palbo is available there, but unfortunately not!
Again, thanks for commenting.
Anne-Marie
I have been to the media and had some press releases about the cost and unavailability of palbo, and have had some good replies from our Federal and local MPs, but it's frustrating that the drug is there but not available to everyone. My mets are in the ribs, spine and sternum.
I have stopped taking Letrozole on the oncologist's advice in order to stay 'newly diagnosed' so am only on painkillers at this stage. I will have to look into it a bit more this week. I do have a Breast Care Nurse who is lovely, but here in rural areas she is only up in this area one day per week with a lot of people to speak to, so I don't like to bother her too much.
Also, I am originally from the UK so have looked into whether palbo is available there, but unfortunately not!
Again, thanks for commenting.
Anne-Marie