Lizzie13
9 years agoMember
Immunotherapy trial
Just to keep you all updated who are not on our TNBC FB page. I am living with Mets to my bones and 3 weeks ago was diagnosed with liver mets. I am extremely fortunate that my oncologist is so onto it and I was enrolled in an immunotherapy trial the day I was diagnosed (that coincidently opened the following week). Monday of this week I found out I had been accepted and was in the double arm group. The two drugs are CPI-444 and Atezolizumab. Atezo is a fortnightly IV infusion and the CPI-444 (which I loving pet-named my Star Wars cure) is a twice daily tablet. Both drugs have different actions but in short are turning on my immune system to help fight the cancer cells.
On Tuesday of this week they closed the Triple Negative Breasts Cancer arm as it was full so I got into this trial by the skin of my teeth. There have been a lot of uncanny coincidences regarding this trial and I am hoping they all mean I am being looked after and was just "meant" to be on it.
It is ground breaking technology for those of us with Stage IV TNBC and so far (and if successful which pre-clinical trials have shown) will be the only targeted therapy for us. I feel so privileged and honoured to be a part of this and already feel like my body is different. I am more active, getting up at 5am instead of 8, less tired and have an achy hip (which is a good thing haha - cannot be more mets cos it was all dug out when they replaced my hip earlier this year).
I am happy to keep everyone updated with the trial and how things are going, I have my first diagnostic scan in 3 months and the trial is for 2 years.
On Tuesday of this week they closed the Triple Negative Breasts Cancer arm as it was full so I got into this trial by the skin of my teeth. There have been a lot of uncanny coincidences regarding this trial and I am hoping they all mean I am being looked after and was just "meant" to be on it.
It is ground breaking technology for those of us with Stage IV TNBC and so far (and if successful which pre-clinical trials have shown) will be the only targeted therapy for us. I feel so privileged and honoured to be a part of this and already feel like my body is different. I am more active, getting up at 5am instead of 8, less tired and have an achy hip (which is a good thing haha - cannot be more mets cos it was all dug out when they replaced my hip earlier this year).
I am happy to keep everyone updated with the trial and how things are going, I have my first diagnostic scan in 3 months and the trial is for 2 years.