Forum Discussion
maggie14
9 years agoMember
Hormone Therapy
Hi Everyone I am feeling very grateful today ,I have been on Femara and 4 weekly infusions of Zometa for 12 months now and the results for the scans were good, at 6months they worse. January 2016 I was diagnosed with er+pr+her- metastatic breast cancer with mets in my bones.
I had the primary back in 2002 , found early ,had lumpectomy and rads , I thought i was ok but as was said to me only thing worse than having bc is having it and not knowing.
To get the mets stable will be so good, not to bad on the side effects from the drugs so lucky.
I had the primary back in 2002 , found early ,had lumpectomy and rads , I thought i was ok but as was said to me only thing worse than having bc is having it and not knowing.
To get the mets stable will be so good, not to bad on the side effects from the drugs so lucky.
18 Replies
- brightspaceMemberHi everyone thankyou for your discussions seems that there are quite a few of us with mets ..yes stable is the smiley face of our disease :)
- SouthgirlMember@"wendy h 67" - "stable" has now become my favourite word too!! Best wishes to you for your next scans.
- wendy_h67MemberHi Maggie, good to hear your news ! Stable is such a lovely word in fact it is my favorite word. I hope to hear it next time I have scans and tests done. Living with metastatic breast cancer, Stable is the best news we can have. Best wishes
- PaulaNMemberGreat to hear. I know what you me an about some doctors being a bit blaze about new symptoms. I had a lumpectomy & rads on my left breast April 2016. Iv just had my first checkup, mammogram etc & found out from a plastic surgeon I recently saw that the specialist is watching a node in my right breast & hasn't told me. Iv now got pain on my bra line under my boob but in the bone, I wont be mucking around the the breast surgeon, my GP does a better job
Paula - SouthgirlMemberHi @Share - sounds like your initial diagnosis was a long time before your metastatic diagnosis too. It's so hard to come to terms with - I just feel like the whole five year survival thing is a bit of a false sense of security. Sending you best wishes - let's all look forward!!
- SouthgirlMemberHi @maggie14 - I agree, people need to be reminded that Breast Cancer can sneak back into their lives at any time. My story is similar - I had a primary diagnosis in 2005. I had a mastectomy, clear lymph nodes, ovary removal, and 5 years on Arimidex. All my annual check-ups since then had been fine, but in September 2016 I noticed a lump above my collarbone. A biopsy showed that it was er+pr+her- metastatic breast cancer, then scans revealed bone metastases. Like you, I am now taking Femara, and my scans last week (after four months on Femara) showed the metastases to be stable, or a little improved. Good news, but I am mindful that Metastatic Breast Cancer can only be "managed" not cured.
- maggie14Member
Thanks everyone , I just wanted to tell my story to remind those with early diagnoses, I was early diagnoses ,clear margins and lymph nodes were clear ,its just such a sneaky disease - VixMemberGreat to read everything is going well
- RNSWMemberGood to hear everything is going well xo
- Brenda5MemberMy dad was the same after beating prostate cancer years ago he had bone pain which the drs treated as osteo troubles before the penny finally dropped that it was bone cancer. At least now he has plenty of dr's attention and wants for nothing in physio, pain relief, chemo and all manner of specialists. Incidentally when I had bc I had chemo of Cyclophosphamide and Docetaxel and dad is having the same Docetaxel in 3/4 dose due to his elderly status. There was something published a while ago hinting that some breast cancers and prostate cancers may be linked. Here's to you and my dad getting stable results for as long as possible. <3