Unfortunately only a break from herceptin as in australia the rules of our pbs are not a break more than 6 weeks from perjeta or you can never have if again. I have had a 6 week break from both and it did not help one bit. Its both drugs causing it. The long shelf life on these targeted therapy means the drug sits in your body fat which I don't have much of and releases into your system over the next weeks . My reaction actually gets worse and worse and is the most severe just the week before the infusion . Its weird really. I have asked my gp this morning if he would fax a referral letter to an immunologist as was suggested here. I found one in Brisbane that specialises in drug reactions. OH please let it help!!!!!!!. My family is even cracking under the pressure of this we are all tired and I won't go out anywhere because I need all my ice packs constantly and really I think they are beginning to think I'm more trouble than I'm worth. Sigh.....
