Oh Sam, this all sounds horrible. Am I reading correctly that Roche wanted to help but your onc hasn't jumped on board? Would it be worth getting another oncologist? I have answered one of your posts before. I just had the 12 months of Hercepton and had a similar reaction, but not till the 2nd last dose. (Major itching and like ant bites all bloody night) A dermatologist thought it was dermatomyositis - so 1st visit just a biopsy and sent off tests. 2nd Visit the biopsy showed just an allergic reaction but he finally asked my history (ie hercepton). He told me to book another visit in 2 weeks. Then low and behold his receptionist cancelled this visit. I should of been quicker and refused. Oh well. I just gathered he read up on hercepton. He did give me some cream Diprosone OV, which I said had worked. But now I am not 100% sure. When I got this cream I showered and put nothing else on but the cream!! It worked. But as soon as I went back to normal moisturizing it came back. Cut it short - Probably 3 years since I finished hercepton - still can't use much moisturizer - as in too much or thicker ones - am using Moo Goo wash and shampoo at moment which has been great cause I can get away with no further moisturisers. Anything that is coating my skin results in the itchies. Even sweat, if the itch starts getting worse I jump in the shower. My skin is still very dry and mildy itchy, but it is manageable. I don't use sunscreens, makeup, perfumes etc anything else. When I put something to heavy on the itch starts around my mouth and you can just feel it racing to my eyes and down my neck from there. My eyes and mouth get swollen with a lovely purple red rash on my eyelids (hence the dermatomyositis). The major itchies just seem to be confined to my neck though. (The pseudo ant bites). I can't even imagine what you are going through, I only had a few months of it and have never cried so much. I hope you find some help. Pam
