From bad to worse, but getting better.
I remember writing in these forums when I first had early breast cancer. I’m back! I was diagnosed MBC last year in March. It’s been a crazy roller coaster! My original cancer was triple positive IBC...
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kabash I’m sorry you’re having roller coaster. That’s rotten that you can’t get the Palbociclib on the pbs , I have mets to various bones been on Palbo for 5 years now. I had the full gamut of treatment back in 2017. Chemotherapy, lumpectomy and radiation but still managed to get the mets (there was never any guarantee I wouldn’t) I really don't understand the criteria for getting the Palbo on PBS. I obviously qualified. I am ER PR positive Her negative. I know its the 1st line of treatment for me. I have been told in my case it won’t stop the lesions but slows the rate of growth down. Hopefully in time the powers that be will extend its use. They are giving it to those at high risk now before any mets.
I know how much it costs per month without PBS. Hopefully you can get it under compassionate grounds I’m in Sydney Melbourne have a lot more support services than here hopefully someone down there can link you up Have a look at the Peter Mac website
Somewhere on this forum there is a list of support groups try the search 🔍 bar In the meantime I’ll try find it and get back to you