Faslodex/Fulvestrant
Hi everyone, anyone been able to get this on compassionate grounds. My onc wants me to take it. However, the first injections is free, the next three months you have too pay for and then it is free ...
Forum Discussion
Hi @lesleyb,
this drug was one that I too had been looking at, however my onc put me on xeloda instead, which I have been on for 2 years, there is a lot of information here re side effects and how to deal with them so wont go into it all over again, as far as I know there is no compassionate access scheme for faslodex and I was given exactly the same information as you, first injection was free then I had to pay for the next 3 at $900 a go, then if it worked the rest were free, so think how it works, if the drug was that good overall for a lot of patients then why isnt it on the pbs?, its a calculated risk, so requires some research and discussion if your onc is a woman ask her if this is a drug that she would take herself, I spoke to a lady only last week who had been on tamoxifen for a period of time and then was put on faslodex and she told me it had changed her life, it was fantastic, so its all about weighing everything up, as you said you are on a pension, so this will be hard, your onc has given you a alternative and perhaps thats the way to go faslodex will always be there as an option for you.
There are quite a few of us" capecrusaders, "here online Cape being that xelodas real name is capecitabine, so good luck, we are here anytime for any help or information,
wendy55
this drug was one that I too had been looking at, however my onc put me on xeloda instead, which I have been on for 2 years, there is a lot of information here re side effects and how to deal with them so wont go into it all over again, as far as I know there is no compassionate access scheme for faslodex and I was given exactly the same information as you, first injection was free then I had to pay for the next 3 at $900 a go, then if it worked the rest were free, so think how it works, if the drug was that good overall for a lot of patients then why isnt it on the pbs?, its a calculated risk, so requires some research and discussion if your onc is a woman ask her if this is a drug that she would take herself, I spoke to a lady only last week who had been on tamoxifen for a period of time and then was put on faslodex and she told me it had changed her life, it was fantastic, so its all about weighing everything up, as you said you are on a pension, so this will be hard, your onc has given you a alternative and perhaps thats the way to go faslodex will always be there as an option for you.
There are quite a few of us" capecrusaders, "here online Cape being that xelodas real name is capecitabine, so good luck, we are here anytime for any help or information,
wendy55