dx'd with innumerable liver mets this month.

1210polly said:

Anyone else with extensive, innumerable liver mets?
How has your journey gone?
Warmly, Polly

Hi there Pollly,

I was diagnosed with widespread liver mets 5yrs ago now after being diagnosed with a bout of septicaemia. 

Ok so I did Abraxane chemo 3wks on 1wk off combined with Herceptin for one year, second year I continued with Abraxane chemo but we changed it to fortnightly still with herceptin.  this was entirely I personal choice on my part and my oncologist listened to my concerns and as I was coping with the chemo we continued it for the second year.  I believe normally they give you 6mths or 12mths Abraxane.  I was an absolute wreck and had a 5yr old the thought of no chemo I couldn't bare the thought of I was so so scared. Finally about the 18mth mark I accepted my diagnosis and after the 2yrs of chemo and Herceptin, we dropped the chemo and continued with Herceptin but combined it with an AI drug Aromasin, I have been on Herceptin / Aromasin for 3yrs now and my liver mets have kept stable.  I got a 30% reduction in tumour size and my liver has lots of scar tissue now and is a different shape apparently, but hey who cares what shape your liver ends up when your living with mets.

Hope your going well, love to hear from you some more

kim xx