Forum Discussion
wendy55
9 years agoMember
Hi polly, i was diagnosed with stage 4 in june 2013, so coming up to my 4 year anniversary, mine had already metasized to my liver and my bones, so as you can imagine quite a shock one minute i am okay the next i am being told my diagnosis and do i know an oncologist?I had 6 tumours in my liver as well as innumerable in my bones!! and of course the ones in my left breast where it all started, so first off chemo, then femara then affinitor/exemestane/aromisin now I am on Xeloda and have been for the last 14 months, not pleasant but do able, I know that the xeloda will not last forever and so of course there is always the when will it stop working and where do we go from here I am hoping that the petition to get palbociclib into the country is successful as my oncologist has said that it would work for me,at the moment the biggest tumour which was 17cm is now down to 11cm and one which was 11cm is nown down to 7cm and the rest have disappeared, so the xeloda is definately doing its job, I too have xjeva monthly, I also have a vitamin b 12 injection monthly,I take each day as it comes, some are better than others, I have a fantastic McGrath Breast Care Nurse,for support as well as a pyschologist for my mental health,metastatic breast cancer is now looked at as a "chronic disease" which can be managed, and yes it can, I listen to my body now and If I am tired I will rest, metastatic breast cancer has over the years made me a little selfish and now I find I can say no a lot better, so glad that your oncologist and team have a great outlook for you, I forgot to mention that I am also er pr/ positive,
So will be thinking of you on the 10th, and please keep in contact with us on the metastatic breast cancer forum - we are here to laugh with you, cry with you, and vent, we have very broad shoulders,
love
wendy 55
So will be thinking of you on the 10th, and please keep in contact with us on the metastatic breast cancer forum - we are here to laugh with you, cry with you, and vent, we have very broad shoulders,
love
wendy 55