Forum Discussion
Angelo
7 years agoMember
Can medication be taken in the evening.
Hi Everyone, I have recently commenced my first three week cycle of Anastrozole and Ribociclib. The fatigue and muscle ache was dreadful from about day 8 to day 13. I was wondering if taking the medication in the evening would make it easier for me during the day time. I asked my Oncologist if it mattered when I took the tablets ( other than the same time every day within the cycle) and he said he didn’t think it would matter. Has anyone got any advice or can share some experiences with taking these specific meds. Hope you are all doing OK xx
21 Replies
- elisewjkMemberMy oncologist advised to take the ribociclib in the morning (can cause issues with sleep apparently) at a regular time each day. I also read somewhere it was better to take both the letrozole and ribociclb together for greater efficacy, don't quote me on that tho :)
- Patti_JMemberThanks for the cool towel info @kezmusc. They seem to be very popular and difficult to obtain. I managed to track one down at a pop up store in my local shopping centre. Letrozole is apparently doing its job: suppressing oestrogen! ☹
- kmakmMember@kezmusc Thanks!
- kezmuscMemberNot sure, this one was from one of those specialty stands that pop up over xmas in the shopping centres. Amazon has them or you can probably get something similar in one of the sports stores.
- kmakmMember@kezmusc Will track one down when I get home. Chemists?
- kezmuscMemberChanged Tamoxifen for a while to just before bed. Bad move. Woke up an hour and a half later absolutely drenched in sweat. Disgusting, I gave that up after a week.
Mornings no good either. Interferes too much with work and whatever else I want to get done. So I take it at about 6.30pm wait out the three or 4 flushes that follow almost exactly one hour after and the feet tingling (why does it do that?). By the time I go to bed I can normally sleep pretty well.
Different drugs, different people and different reactions. Another one of those things you just have to suck it and see.
@kmakm , Have you tried a cool towel? I was given one for xmas. You just wet them with cool/cold water, wring them out and kind of give them a snap and they cool down. It even works with perspiration, any kind of dampness as soon as they loose their cool you just snap them again and it brings it back. I am finding it really quite usefull and works fast. If you get a really bad flush I just wrap a bit of ice in it as well. It is called COOLFCA super cooling towel. Cheap as.
Good luck. xoxoxo - kmakmMember@Sister That's what my first oncologist said to me, laughing.
I didn't have any arthritic type aches and pains before cancer, was still getting my period.
I didn't laugh back.
I have become incredibly intolerant of pre-menopausal medical professionals who make light of the severity of the change of cancer induced menopause. It's comprehensively ruined my sleep and therefore my energy and frequently my mood. Not to mention the sheer unpleasantness of the hot flushes that are preceded by lengthy waves of nausea, make me sweat buckets and feel like I'm going to spontaneously combust so intense is the heat. It's not f*****g funny. - SisterMemberIt's highly aggravating that, by the time I get off this medication that makes me feel like an old woman, I'll probably be there anyway so the joint pains are likely to be there forever.
- Kiwi_AngelMember@kmakm it’s abit hard to suck it up when it’s constant with no end in sight. Good to know if u do take a break every now and then that the pain goes away quite quickly.
- kmakmMember@"Kiwi Angel" Kind of, yes. I've had the reminder of what life is like without it. My ankles are sore and throbbing as I type...
Suck it up woman, suck it up!