The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor. 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Mets = Hip Replacements x 2","id":"message:106070","revisionNum":1,"repliesCount":8,"author":{"__ref":"User:user:19479"},"depth":0,"hasGivenKudo":false,"board":{"__ref":"Forum:board:living-with-metastatic-breast-cancer"},"conversation":{"__ref":"Conversation:conversation:106070"},"readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:106070"},"body@stripHtml({\"truncateLength\":200})":"Dear lovely ladies Amazing how all can seem to go 'swimmingly well' for a while - once we are in that so-called stable phase. In Jan I decided to sell our house and buy a new stunning 3 level town...","body@stringLength":"3461","rawBody":"Dear lovely ladies
Amazing how all can seem to go 'swimmingly well' for a while - once we are in that so-called stable phase. In Jan I decided to sell our house and buy a new stunning 3 level townhouse (great for a 10 and 12 yr old) and a fresh start as a single mum, even though ex-husband has some equity in new place at least it all works - well for now. Doing a financial settlement and will is an interesting exercise, not! Then on a whim in March (and after tumour markers rose), I had an opportunity to go to Whistler - all the way from Sydney - which I did! Then preparing for the big move in late April.... School holidays underway and niggling back pain - making me think what move or position from pilates or yoga had caused it; then physio for 2 consecutive days, valium from local Dr, and immediate suggestion of hospital.... 5 and a half weeks later - incredible: back pain was attributed to fractured pelvis, hence the hip replacement; then there was talk about radiation to the other hip and possible hip replacement later.....and brain kicked in at the 3 day mark post-surgery - painful yes and lots of rehab needed but NO WAY was I going to get better from first surgery and do it all again, so hip replacement no.1 (May 1 - daughter's birthday - she turned 10 but we had surprise party day before in hospital - all seems a bit surreal now!), and then my b'day May 8 (in hosp) and hip replacement no.2 on May 15.
Looking back - quite a lot happened but its strange when you come out of hospital after being in there so long. And I was scheduled for bilateral mastectomy and reconstruction next Tues. But MDTM (multi-disciplinary team meeting) last Wed has resulted in surgery being postponed til Sept (3 months) because I did have a mild infection in first scar (in hosp) and also a DVT - enough to send surgeons (that didn't know me running in opposite direction....!)
But strange when I look back - Dx de novo in Feb last year - still wish I'd had breasts off then, like ovaries. But c'est la vie. Been responding to Ibrance, X geva and Letrozole relatively well since June 2016 (good until Feb this yr when tumour markers started rising).
So prognosis now is radiation next week as a \"chaser\" to hips to mop up remaining cancer cells, resume Ibrance for 2 mths then go off again whilst I have bilateral masectomy & reconstruction in Sept.
On that note I'd also be keen to share stories with any of you who have had mastectomy PLUS reconstruction (same op)? I'm now 53, and as I said to oncologist, I don't know what the future holds, but I'd like to think I may re-partner (single for last 7 yrs), and even if I don't femininity is important to my overall sense of identity. If that means I live one year less, then so be it - but I don't think they (or me) can really calculate that \"what if\"......
Would LOVE to hear from anyone who has had hip replacement or bilateral mastectomy/reconstruction.
best wishes, Elaine xxx (Sydney)
PS - Karen - I LOVED reading your 10 yr post - it gives us all hope!! as it does with similar ladies in Sydney (albeit not many) PPS I still intend to organise and hold the inaugural flashmob dance in SYD in MBC day this year on Fri October 13th. If you're SYD based - please let me know!! We have Qantas behind us and also Fitness First, and hopefully BCNA!","kudosSumWeight":0,"postTime":"2017-06-09T19:13:35.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":3,"currentRevision":{"__ref":"Revision:revision:106070_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":301},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"body":"Dear lovely ladies
Amazing how all can seem to go 'swimmingly well' for a while - once we are in that so-called stable phase. In Jan I decided to sell our house and buy a new stunning 3 level townhouse (great for a 10 and 12 yr old) and a fresh start as a single mum, even though ex-husband has some equity in new place at least it all works - well for now. Doing a financial settlement and will is an interesting exercise, not! Then on a whim in March (and after tumour markers rose), I had an opportunity to go to Whistler - all the way from Sydney - which I did! Then preparing for the big move in late April.... School holidays underway and niggling back pain - making me think what move or position from pilates or yoga had caused it; then physio for 2 consecutive days, valium from local Dr, and immediate suggestion of hospital.... 5 and a half weeks later - incredible: back pain was attributed to fractured pelvis, hence the hip replacement; then there was talk about radiation to the other hip and possible hip replacement later.....and brain kicked in at the 3 day mark post-surgery - painful yes and lots of rehab needed but NO WAY was I going to get better from first surgery and do it all again, so hip replacement no.1 (May 1 - daughter's birthday - she turned 10 but we had surprise party day before in hospital - all seems a bit surreal now!), and then my b'day May 8 (in hosp) and hip replacement no.2 on May 15.
Looking back - quite a lot happened but its strange when you come out of hospital after being in there so long. And I was scheduled for bilateral mastectomy and reconstruction next Tues. But MDTM (multi-disciplinary team meeting) last Wed has resulted in surgery being postponed til Sept (3 months) because I did have a mild infection in first scar (in hosp) and also a DVT - enough to send surgeons (that didn't know me running in opposite direction....!)
But strange when I look back - Dx de novo in Feb last year - still wish I'd had breasts off then, like ovaries. But c'est la vie. Been responding to Ibrance, X geva and Letrozole relatively well since June 2016 (good until Feb this yr when tumour markers started rising).
So prognosis now is radiation next week as a \"chaser\" to hips to mop up remaining cancer cells, resume Ibrance for 2 mths then go off again whilst I have bilateral masectomy & reconstruction in Sept.
On that note I'd also be keen to share stories with any of you who have had mastectomy PLUS reconstruction (same op)? I'm now 53, and as I said to oncologist, I don't know what the future holds, but I'd like to think I may re-partner (single for last 7 yrs), and even if I don't femininity is important to my overall sense of identity. If that means I live one year less, then so be it - but I don't think they (or me) can really calculate that \"what if\"......
Would LOVE to hear from anyone who has had hip replacement or bilateral mastectomy/reconstruction.
best wishes, Elaine xxx (Sydney)
PS - Karen - I LOVED reading your 10 yr post - it gives us all hope!! as it does with similar ladies in Sydney (albeit not many) PPS I still intend to organise and hold the inaugural flashmob dance in SYD in MBC day this year on Fri October 13th. If you're SYD based - please let me know!! We have Qantas behind us and also Fitness First, and hopefully BCNA!","customFields":[]},"Conversation:conversation:106070":{"__typename":"Conversation","id":"conversation:106070","solved":false,"topic":{"__ref":"ForumTopicMessage:message:106070"},"lastPostingActivityTime":"2017-07-08T01:54:49.000-07:00","lastPostTime":"2017-07-08T01:54:49.000-07:00","unreadReplyCount":8,"isSubscribed":false},"ModerationData:moderation_data:106070":{"__typename":"ModerationData","id":"moderation_data:106070","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:106070_1":{"__typename":"Revision","id":"revision:106070_1","lastEditTime":"2017-06-09T19:13:35.000-07:00"},"ForumReplyMessage:message:106077":{"__typename":"ForumReplyMessage","id":"message:106077","conversation":{"__ref":"Conversation:conversation:106070"},"author":{"__ref":"User:user:19479"},"revisionNum":1,"uid":106077,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:living-with-metastatic-breast-cancer"},"subject":"Re: Bony Mets = Hip Replacements x 2","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:106077"},"parent":{"__ref":"ForumTopicMessage:message:106070"},"body":"Thank you SO VERY much..... It's still surreal in so many ways. I'm nearing the end of rehab and have had one week of radiotherapy (to \"mop up\" any left over cancer cells in the hip area). Am still so tired and well and truly over not being able to drive!!
Elaine ","body@stringLength":"295","rawBody":"Thank you SO VERY much..... It's still surreal in so many ways. I'm nearing the end of rehab and have had one week of radiotherapy (to \"mop up\" any left over cancer cells in the hip area). Am still so tired and well and truly over not being able to drive!!
Elaine 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