Bony Mets = Hip Replacements x 2
Dear lovely ladies Amazing how all can seem to go 'swimmingly well' for a while - once we are in that so-called stable phase. In Jan I decided to sell our house and buy a new stunning 3 level town...
Forum Discussion
Hi Elaine
Sorry to hear that life for you has been so tough - two hip replacements on top of everything else is huge!
It quite strange that we were diagnosed at roughly the same time, single the same amount of time and two kids the same age and that we are still experiencing the same things. I sold my house in December and bought an apartment in Elwood which I moved into in April! It is on the third floor with no elevator and I am now wondering what I was thinking given that I have mets in my hip too (and they seem to be acting up at the moment - either the mets are getting worse or it is a flare from new treatment)!
I have an appointment booked with a plastic surgeon in July to find out what my reconstruction options are. I had a mastectomy early on due to progression. I want to have a reconstruction, but don't really want to go through the process as my mastectomy surgery was hard to recover from. Like you, I think that finding someone to partner with is not easy without a reconstruction - also not easy knowing that you have a reduced life expectancy.
I have started on Afinitor a month ago because they discovered that my tumours were caused by a mutation in the ATK-1 gene and Afinitor targets this mutation. Don't know how I am going on this yet - still trying to acclimatise to the side effects (serious mouth ulcers). I am taking half dose one day, and full dose the next and seem to be going OK. Although, I am wondering if my liver is coping as I have a bit of upper quadrant pain and am sooo tired! Blood tests scheduled for next week should answer this!
How are you finding the rehab for you hip replacements? You are one tough and positive lady and I hope your rehab goes well, so that you are in tip top shape for those new breasts in September!
All the best
Lisa
Sorry to hear that life for you has been so tough - two hip replacements on top of everything else is huge!
It quite strange that we were diagnosed at roughly the same time, single the same amount of time and two kids the same age and that we are still experiencing the same things. I sold my house in December and bought an apartment in Elwood which I moved into in April! It is on the third floor with no elevator and I am now wondering what I was thinking given that I have mets in my hip too (and they seem to be acting up at the moment - either the mets are getting worse or it is a flare from new treatment)!
I have an appointment booked with a plastic surgeon in July to find out what my reconstruction options are. I had a mastectomy early on due to progression. I want to have a reconstruction, but don't really want to go through the process as my mastectomy surgery was hard to recover from. Like you, I think that finding someone to partner with is not easy without a reconstruction - also not easy knowing that you have a reduced life expectancy.
I have started on Afinitor a month ago because they discovered that my tumours were caused by a mutation in the ATK-1 gene and Afinitor targets this mutation. Don't know how I am going on this yet - still trying to acclimatise to the side effects (serious mouth ulcers). I am taking half dose one day, and full dose the next and seem to be going OK. Although, I am wondering if my liver is coping as I have a bit of upper quadrant pain and am sooo tired! Blood tests scheduled for next week should answer this!
How are you finding the rehab for you hip replacements? You are one tough and positive lady and I hope your rehab goes well, so that you are in tip top shape for those new breasts in September!
All the best
Lisa