Hi everyone, well, today I had my first bone scan. My GP ordered it for mid upper arm pain that I've been having since the start of the year with no relief from cortisone injections etc. after the second stage of scanning they said they had found some hot spots in my spine and so I had to have a further 60 min 3D scan of spine followed by another full body CT. i do have a lot of back pain which almost makes me cry in the night.. ( hence I don't sleep much) but I've always put it down to arthritis which I have been dx with many years ago and just thought it was getting worse with age. My breast ca was only stage 1c T1c N0 M0 ....treatment was total mastectomy with no further treatment. Im feeling a tad anxious now 😕. Does anyone have any similar experiences?

I don't have any bone pain at all. This is despite the fact that I have very extensive bone mets.My oncologist told me that the only time I would have bone pain was if the cancer was in my bone marrow.

Thanks arpie, I’ll do some research on Mobic.I only take it occasionally but still.....I have a foam topper but I think it’s wearing out.

Oh dear that just sounds like an absolute clusterf**k of pain, testing and worry! You poor love. I haven't had a similar experience, but I wanted to reach out and say I hope you get good news very very soon. Big hug, K xox

Your're not on any hormone therapy @Cavemouse? I have chronic lower back and left hip pain since starting HT. Have had 2 x bone scans and CT's because I have myself convinced it was something horrid. It's not.

Sorry you are going thru this pain, @Cavemouse - but try not to overthink it ..... wait until you get the results & discuss it with your GP or the specialist. Hopefully, it will all be good news (if arthritis is ever good news! I also have it 24/7 & it is the pits!) Try not to work yourself up too much ..... all the best for good results xx

Bone mets vs arthritis | BCNA Online Network

arpie
Member
7 years ago
I've put one in our camper as well on our Queen bed @Brenda5 ..... it has made all the difference!

The Memory Foam ones can make the bed a lot hotter tho, I've heard ..... I've gone with a top quality egg carton shaped one.
Brenda5
Member
7 years ago
Best investment ever was a commercial grade mattress topper. No more sciatica. No more aching hips.
Silba
Member
7 years ago
Thank you , getting re scanned on Monday 1st check up after active treatment, hopefully it will be arthritic , can't get hip /leg to do the knee side stretches , but I do do the cat stretch , my dog thinks I want to play with her everytime I do it :).

I am over walking, don't have a car , so public transport and walking are my mode of transportation .....
TonyaM
Member
7 years ago
Thanks arpie, I’ll do some research on Mobic.I only take it occasionally but still.....
I have a foam topper but I think it’s wearing out.
primek
Member
7 years ago
@Silba Ive had years of tailbone pain (mainly noticed if sit on upright chair for too long ) had for years pre cancer. It is disc degeneration of my tailbone and at times it gets inflamed and doesn't move properly so its painful. Walking and stretches of leg bent and touching knee and pushing knee outward (on floor if okay) really helps as do cat streches and lifting bottom off floor into a bridge.
Can be difficult with hip issues.
arpie
Member
7 years ago
Be very careful of Mobic @TonyaM ... it nearly gave me liver failure some years back when in pain for a hip injury and I ended up in hospital having an uppie and a Downie as well! I thought it had been pulled from the shelves! Not everyone has bad side effects from it tho

https://www.drugs.com/comments/meloxicam/mobic.html

Sometimes, just a mattress Topper can do the trick - a sort of ‘pillow top’ that gives more comfort, but still has the required firmness underneath from your original mattress?
kmakm
Member
7 years ago
We're due for a new mattress too @TonyaM. Pity they're so expensive. It's going to have to wait.
TonyaM
Member
7 years ago
We are always going to worry about new aches n pains- it comes with the cancer package! I have shoulder and lower back pain that was getting worse so had a ct scan of my spine.Turns out it’s arthritis with nerve impingement-yay! not cancer.
It’s worse at night so I either take panadol or Mobic. I’m also thinking I might need a new mattress?
Silba
Member
7 years ago
I have 2 spots on my hip, one is 100% mets which they did radio on the other one right on my hip joint which is painful to walk with they are not sure, even after a PET scan whether is arthritis or mets so they are just going to monitor it, which frustrates me as I think how can they not tell the difference, apparently is tricky ???

So I have also told them I have severe pain in my tail bone , they just shrug and say nothing shows on the scan ???

So take my pain meds and trying to keep active , and just swear a lot when the hip just doesn't want to move......
Patti_J
Member
7 years ago
I don't have any bone pain at all. This is despite the fact that I have very extensive bone mets.
My oncologist told me that the only time I would have bone pain was if the cancer was in my bone marrow.