Here I am girls..... Oncologist appointment tomorrow, bloods drawn Tuesday. Tomorrow is D Day - TM Results Day - Have they increased further?? what is going on in my body??? & once again I have dropped into a heap of OMG OMG OMG how can this be happening to me again, isn't what I have already been thru enough?? I can feel the tears ready & building behind my eyes just waiting for something totally stupid to set them flowing...

Hey Cate, big hugs.....totally understand how you are feeling. It is so hard when we feel out of control. But you can do this.Also, have you tried the Smiling Mind app? Might be good just to slow down a bit. It can all be so overwhelming! Nikki x

Hi Cate - we are all willing you along to good results! I hope your feelings are purely nervous energy and the tears that fall will be with total relief or a really dumb joke that made you laugh til you cried!! OMG!Take care xx

Thinking of you tomorrow, Cate, with lots of positive energy and a big hug.xx

You will be taking all our positive thoughts with you Cate. You are not alone - we are all with you. Jane xx

Hey Cate Am thinking of you and wishing you all the best for tomorrow.Remember to breathe.....as someone else said smell the roses while inhaling and blow out the candles when exhaling....bug hug xx

Back to being Terrified | BCNA Online Network

Share
Member
9 years ago
Hi @Brenda5 - thanks for your update with your Dad - always helps to get info from others and hear their stories as opposed to pharma notes & clinical data.

My sister (who lives in Central West NSW on a property) has given me hemp oil for salad dressing, hemp seeds & protein powder for smoothies & hemp oil for topical application on bony met sites.

I am looking at doing detox with power smoothie/shots then followed by 6 week course of THC (cannabis) oil shots, which my sister & her naturopath have said the same thing - will help with movement and pain (& possibly less reliant on pain meds).

Best wishes to your Dad & his upcoming scans xx
Brenda5
Member
9 years ago
My dad is on Zoladex, injection lasts 3 months, Denomosaub injection which lasts 6 weeks (I think) and also just finished 10 rounds of Docetaxel chemo (one of the same ones I had for breast cancer). He turns 77 in a week but is responding well to the treatment. Scans net month to see how its going. He is also on cannabis oil which is amazing for his movement and pain.
iserbrown
Member
9 years ago
A whole new world of drug names, specialists, aches and pains we were oblivious of previously! Who'd thought we would need to become so conversant on ovary shutting down drugs when we are dealing with the breast?
Cate64
Member
9 years ago
Omg.... yes @iserbrown i am, my goodness all these drugs are confusing....
iserbrown
Member
9 years ago
Are you thinking of Zoladex?
Cate64
Member
9 years ago
Nah sorry @Share i have been racing home to correct myself... i realised pretty quickly that i had given you incorrection info... all the bloody drugs starting with X gggrrr.... Xeloda is the drug that shuts down your ovaries... i was on that before i gad them removed..
Share
Member
9 years ago
Hi @Cate64 - my appointment is 9am next Monday 6th March.
Yes, I have been given details about loads of moisturiser (Moo Goo) for hands & feet & socks to bed also (better once this humidity ceases in Sydney !)
I too am having the bone strengthening injection bi-monthly but I only know it as Xgeva (Denomosaub).
http://www.drugs.com/xgeva.html
Enjoy your w/e - happy running xxx
Cate64
Member
9 years ago
Hi @Share... Xoladex is the bone injection & Xeloda is oral Chemo.

I am day 7 of Xeloda, taken am but obviously not pm yet... Have been putting lots of moisturiser on my feet before bed & covering them with socks & keeping up lots of moisturiser on my hands....

I will not allow this to stop my running, its what keeps me sane on this journey!!!!

What day is your appointment???
Share
Member
9 years ago
Yes, @Cate64 - there is a party going on & we are not invited !!
I am thinking that this will be the next recommendation from my oncologist.
Can I confirm that Xoladex is different to Xeloda ?
My dear Mum was taking Xeloda for only 4 months when she developed such dreadful hand/foot syndrome (could barely put weight on her feet to walk) and felt incredibly tired and ill (mind you, she was 77 at time time !). She did not continue with the treatment and sadly passed away 6 months later.
This memory of course is the ongoing fear for me :(
Energy, love & light to us both for next week xx
Cate64
Member
9 years ago
@Share them darn pesky TM's.... who the heck do they think they are, partying in our bodies without permission??? I am really sorry you are on the watch, sending big hugs.

I to, am seeing my Oncologist next week...... Meanwhile I am taking Xoladex to hopefully arrest the partying TM's..