Forum Discussion
Alaparib
Hi, I was wondering if anyone has taken or is taking Alaparib? I have lung mets which have grown (again) & have been on Letrozol for about 12mths. Yesterday my oncologist started me on Alaparib & I was wondering how others were coping with it. Reading the info sheet & listening to oncologist, it sounds pretty much like oral chemo with very similar side effects. I might get to keep my hair this time :#. Any recommendations would be greatly appreciated. Cheers
4 Replies
- I wish I was as lucky as you, though so far have kept my hair. I am on day 5 & the last couple of days have been less than desirable, with muscle weakness, vomiting & nausea, limited energy & fatigue, no appetite & change in taste buds. Even developed a side effect not on the list - vaginal spotting, which stopped while taking Tamoxifen 9yrs ago. I pretty much sailed through chemo & radiotherapy, so suppose had to catch up at sometime. I am hoping that as I get used to it, the symptoms will reduce.Thank you for giving me hope that things may improve
- Yes I'm on it. It's better than chemo there - you will get to keep your hair! But it's a bit of a pain as you take 8 tablets in the morning and 8 at night, ideally on an empty stomach so you have to plan your meals around it. I have lost my appetite too, and sometimes have some mild nausea, but apart from that it is pretty good. My energy levels are pretty good. All the best with it!
- tagged you in another post about it that was july 2017
- Oops, that is supposed to read Olaparib. Trying to do stuff without glasses ;)
