Forum Discussion
Sam09
9 years agoMember
ADVICE NEEDED SUPER ITCHY AND GETTING NO SLEEP ON HERCEPTIN AND PERJETA
I am wondering if anyone else has terrible itching on herceptin and perjeta infusions. I am on my 10th 3 weekly treatment and what started out a slight itch around my neck shoulders and arms has ...
JenoB
9 years agoMember
Hi @Sam09
I'm also on 3 weekly herceptin and perjeta and have the horrible itch. Isolated to the forearms and base of neck but enough to drive me crazy at times. On the advice of my onc I now take a daily claratyne and that has made things heaps better. I definitely notice if I forget!
Every now and again if it's really bad I take another one in the evening and that allows me to get to sleep.
I tried a few different brands of antihistamine before finding the one that worked for me, so good luck.
I also use the ice pack on really hot nights, but haven't found anything else that has worked.
I've been on this regime for a year now, with no end in sight (fingers crossed it keeps working for as long as possible!) so will be interested to see if there is anyone else with a better solution.
Hopefully this helps and you get the rest you need soon!
Take care
Jen xx
I'm also on 3 weekly herceptin and perjeta and have the horrible itch. Isolated to the forearms and base of neck but enough to drive me crazy at times. On the advice of my onc I now take a daily claratyne and that has made things heaps better. I definitely notice if I forget!
Every now and again if it's really bad I take another one in the evening and that allows me to get to sleep.
I tried a few different brands of antihistamine before finding the one that worked for me, so good luck.
I also use the ice pack on really hot nights, but haven't found anything else that has worked.
I've been on this regime for a year now, with no end in sight (fingers crossed it keeps working for as long as possible!) so will be interested to see if there is anyone else with a better solution.
Hopefully this helps and you get the rest you need soon!
Take care
Jen xx