The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor. 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4 done and dusted woot woot !!!","id":"message:227971","revisionNum":1,"repliesCount":31,"author":{"__ref":"User:user:20011"},"depth":0,"hasGivenKudo":false,"board":{"__ref":"Forum:board:living-with-and-beyond-breast-cancer"},"conversation":{"__ref":"Conversation:conversation:227971"},"readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:227971"},"body@stripHtml({\"truncateLength\":200})":" Soooooooooooo...Halloween was my 4th year anniversary NED!!!!! (A bit of a late post I know) One more year and I get to be on the official stats :wink: Finally, after seeing my BS the ot...","body@stringLength":"2912","rawBody":" Soooooooooooo...Halloween was my 4th year anniversary NED!!!!! (A bit of a late post I know)
One more year and I get to be on the official stats :wink:
Finally, after seeing my BS the other week I get to have a whole 12months off before the next lot of scans! Which I am quite happy about given the last 18 months.
I am baulking on changing to the letrozole, actually, I am just not going to. I am hoping there will be a new doctor next time so I don't have to explain my \"non compliance\" to her. Lol
It's been a pretty good year (all 2020 catastrophies considered) and surprisingly I am keeping up with my \"say yes to all invitions\" which has obviously been a bit interesting with the whole COVID thing. Anyhow, I just got back from Fraser Island, which is one of the most stunning places to visit in the world I am sure, even if I did get mauled by sand flies at one campsite (bloody camping)!
I've had an interesting kind of restlessness over the last few months. Whilst I feel well and strong, apart from my toasted brain which is a bit concerning, I now find myself bored shitless with the sameness of everything, the mundane day to day. I guess it's still that mortality slap in the face hanging in there, looking for something more kind of thing. It's more frustration at not really knowing what to do about it.
I've taken up painting which I am enjoying. I'm renovating my bathroom (eek,,,huge job) and all the usual farm work, so I am busy but I'm missing some kind of something (not that I'm the kind of person that wants to go juming out of a plane or anything) In the words of Bruce Springstein, \"I'm just tired and bored with myself\" hahaha Anyhooo, I guess I'll work it out at some stage.
I hope everyone is managing ok with whatever stage of this shit fight they're at and the train wreck that is 2020.
For those just starting out, keep breathing, keep going one foot in front of the other, you've got this, and you'll find a strength inside you never thought you had. Although you probably wont' realise it for a while.
For those in the midst of treatment, hang in there guys and keep those goal posts firmly in sight. Your getting closer every day.
For those that are beginning \"survivorship\".....this is what they didn't warn you about and they should have.
I'm going to split this into another post so this one doesn't become a \"war and peace\" and it's the long haul so I've found there's much to be learnt.
Lots of love to all and thank you to everyone who has listened, helped and guided over the last four years
Hugs to all xoxoxo
","kudosSumWeight":5,"postTime":"2020-11-21T21:29:59.000-08:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:survivorship","text":"survivorship","time":"2025-03-25T05:02:20.282-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":2,"currentRevision":{"__ref":"Revision:revision:227971_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":732},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"customFields":[],"body":" Soooooooooooo...Halloween was my 4th year anniversary NED!!!!! (A bit of a late post I know)
One more year and I get to be on the official stats :wink:
Finally, after seeing my BS the other week I get to have a whole 12months off before the next lot of scans! Which I am quite happy about given the last 18 months.
I am baulking on changing to the letrozole, actually, I am just not going to. I am hoping there will be a new doctor next time so I don't have to explain my \"non compliance\" to her. Lol
It's been a pretty good year (all 2020 catastrophies considered) and surprisingly I am keeping up with my \"say yes to all invitions\" which has obviously been a bit interesting with the whole COVID thing. Anyhow, I just got back from Fraser Island, which is one of the most stunning places to visit in the world I am sure, even if I did get mauled by sand flies at one campsite (bloody camping)!
I've had an interesting kind of restlessness over the last few months. Whilst I feel well and strong, apart from my toasted brain which is a bit concerning, I now find myself bored shitless with the sameness of everything, the mundane day to day. I guess it's still that mortality slap in the face hanging in there, looking for something more kind of thing. It's more frustration at not really knowing what to do about it.
I've taken up painting which I am enjoying. I'm renovating my bathroom (eek,,,huge job) and all the usual farm work, so I am busy but I'm missing some kind of something (not that I'm the kind of person that wants to go juming out of a plane or anything) In the words of Bruce Springstein, \"I'm just tired and bored with myself\" hahaha Anyhooo, I guess I'll work it out at some stage.
I hope everyone is managing ok with whatever stage of this shit fight they're at and the train wreck that is 2020.
For those just starting out, keep breathing, keep going one foot in front of the other, you've got this, and you'll find a strength inside you never thought you had. Although you probably wont' realise it for a while.
For those in the midst of treatment, hang in there guys and keep those goal posts firmly in sight. Your getting closer every day.
For those that are beginning \"survivorship\".....this is what they didn't warn you about and they should have.
I'm going to split this into another post so this one doesn't become a \"war and peace\" and it's the long haul so I've found there's much to be learnt.
Lots of love to all and thank you to everyone who has listened, helped and guided over the last four years
Hugs to all xoxoxo
"},"Conversation:conversation:227971":{"__typename":"Conversation","id":"conversation:227971","solved":false,"topic":{"__ref":"ForumTopicMessage:message:227971"},"lastPostingActivityTime":"2020-12-13T23:04:45.000-08:00","lastPostTime":"2020-12-13T23:04:45.000-08:00","unreadReplyCount":31,"isSubscribed":false},"ModerationData:moderation_data:227971":{"__typename":"ModerationData","id":"moderation_data:227971","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:227971_1":{"__typename":"Revision","id":"revision:227971_1","lastEditTime":"2020-11-21T21:29:59.000-08:00"},"ForumReplyMessage:message:227999":{"__typename":"ForumReplyMessage","id":"message:227999","conversation":{"__ref":"Conversation:conversation:227971"},"author":{"__ref":"User:user:21350"},"revisionNum":1,"uid":227999,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:living-with-and-beyond-breast-cancer"},"subject":"Re: Year 4 done and dusted woot woot !!!","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:227999"},"parent":{"__ref":"ForumTopicMessage:message:227971"},"body":"@Beaglemum I am so jealous. We did the same thing, starting eight years ago and lasting three years. We worked whenever we could find work. I plan on doing it again. We threw away our jobs, sold our house, ignored heaps of family members who all had reasons we shouldn't go, loved every minute of it, and came back broke. Go for it I say.","body@stringLength":"338","rawBody":"@Beaglemum I am so jealous. We did the same thing, starting eight years ago and lasting three years. We worked whenever we could find work. I plan on doing it again. We threw away our jobs, sold our house, ignored heaps of family members who all had reasons we shouldn't go, loved every minute of it, and came back broke. Go for it I say.","kudosSumWeight":0,"repliesCount":0,"postTime":"2020-12-12T19:48:53.000-08:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:227999_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[],"replies":{"__typename":"MessageConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"CachedAsset:theme:customTheme1-1744167880929":{"__typename":"CachedAsset","id":"theme:customTheme1-1744167880929","value":{"id":"customTheme1","animation":{"fast":"150ms","normal":"250ms","slow":"500ms","slowest":"750ms","function":"cubic-bezier(0.07, 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