Hi Kath,
So sorry to hear that you have been having so much trouble and so many difficulties getting checked properly!
I also started having lots of issues around the 3 year mark with Letrozole. Knee issues and then hand, finger and thumb. I honestly did not think it was Letrozole because it took so long to happen but my oncologist had no hesitation in immediately taking me off it. As soon as I saw her and showed her my list of new symptoms she acted by giving me a month off and changing drugs.
I am now feeling so fortunate to have a much, much better quality of life. I also think I had some depression on Letrozole. I feel so much less sad and angry, I have energy again. Even I like being around me more now!
My oncologist made the decision, stating ‘I think this is best for you’. No treatment comes with a 100% guarantee. These are hard choices we have to make.
Hope that you can find the best way forward for you. Take care. xxx