SO sorry to see you here Tulip1 ... you sure have had a hard time of it - and the recurrence has really knocked the wind out of your sails xx. Well done tho, on spotting the lump & being proactive in getting it checked out!
You might like to join the Triple Negative Private Group here, to see if anyone there has had an oestrogen Positive recurrence .... and just chat with others who've been thru the Triple Neg treatment previously .... they may have some tips & tricks that they can share with you. All posts are confidential - only other group members can read & reply to them. xx
Group: Triple Negative Breast Cancer (TNBC) | BCNA Online Network
ANY cancer diagnosis can really muck with your brain, and you've had the double whammy - so if you feel sad, angry, distressed - that is absolutely 100% NORMAL! So let those tears flow! xx You've got a lot on your plate. I hope that you have supportive family & friends around you, specially at this time of year, which has probably impacted you more than you realise xx
But ... you don't have to 'do it' on your own! If the sadness/distress is ongoing .... ask your GP (or your treating team) for a referral to see a counsellor .... or listen to Charlotte Tottman's podcast (link below). Charlotte Tottman is a BC specialist counsellor who was diagnosed herself, had a double mastectomy - so she knows EXACTLY what we've all been thru, both emotionally and physically! Her reaction to her own diagnosis was also quite different to what she 'thought' it might be, given that she'd been counseling women's reactions for some years before, so thought she 'new' what to expect! She is VERY easy to listen to, too xx
http://www.drcharlottetottman.com.au/my-podcast.html.
Raelene Boyle's video is also well worth watching!
https://www.bcna.org.au/resource-hub/podcasts/upfront-about-breast-cancer/upfront-about-breast-cancer/episode-21-raelene-boyle-on-pulling-herself-out-of-the-darkness/
You can also ring our Helpline on 1800 500 258 for a confidential one-on-one chat (Mon-Fri 9-5) xx
Try not to get ‘ahead of yourself’ with the ‘what ifs’ ….. as they may never happen - and going down that rabbit hole (specially if using Dr Google, which we ALL discourage!) will REALLY muck with your brain :( A lot of info on Google doesn’t even relate to your diagnosis or is out of date - so put any questions you have directly to your Breast Care Nurse, your medical team (or here!) xx
Take it one day at a time, one hour, if needed ..... but do keep trying to do 'stuff you love' doing too .... so you have some good 'down time' as well!
I treated myself to a holiday on Norfolk Island after all my active treatment ..... as a 'Well Done YOU' for going thru all that stuff - as a reward!!!
There is HEAPS of info in the link below to help you navigate the blog and also some tools to evaluate your own physical and mental recovery thru your ongoing treatment! xx.
https://onlinenetwork.bcna.org.au/discussions/general-discussion/a-big-welcome-to-all-new-online-network-members-/222737
Take care & all the best for your ongoing treatment & surgery xx