The tears are driving me mad
Hello i am 4 year survivor and have been on tamoxifen the four years. i am fed up with flushes, feeling like utter crap, NO libido (can’t remember what intimacy with my husband feels like) mood swin...
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Hi @JacquiP
I sympathise with you lovely. It's been difficult for me to persevere with it and I am not even three years in. I managed the sleep issue by changing brands which also tamed the hot flushes down a bit as well. The nausea, bone aches and light headedness remain, though not as bad. Love life..........well, tha's a very sad side effect of all this shit.
I run three months on Tamox and one month off. At the beginning it would wear off quickly and I would have three really good weeks. Now it's taking nearly the whole month to notice any difference. This time I have extended my break to 6 weeks. There appears to be no problem side effects with me just stopping it regularly. Sometimes the flushes will increase for a couple of days as my body tries to work out what the heck I am doing to it now.
My onc knows what I am doing and agrees, it's better than not doing anything. Not that I think they really care once you walk out the door.
It's a difficult call for a maybe. I have tried to explain this to my husband but I don't think it gets through that it's no guarantee anyway.
. To be very honest the only reason I continue is because of my family at this point. Left to my own devices it would a resounding hell no.
Good luck with your decision sweet. xoxoxo
I sympathise with you lovely. It's been difficult for me to persevere with it and I am not even three years in. I managed the sleep issue by changing brands which also tamed the hot flushes down a bit as well. The nausea, bone aches and light headedness remain, though not as bad. Love life..........well, tha's a very sad side effect of all this shit.
I run three months on Tamox and one month off. At the beginning it would wear off quickly and I would have three really good weeks. Now it's taking nearly the whole month to notice any difference. This time I have extended my break to 6 weeks. There appears to be no problem side effects with me just stopping it regularly. Sometimes the flushes will increase for a couple of days as my body tries to work out what the heck I am doing to it now.
My onc knows what I am doing and agrees, it's better than not doing anything. Not that I think they really care once you walk out the door.
It's a difficult call for a maybe. I have tried to explain this to my husband but I don't think it gets through that it's no guarantee anyway.
. To be very honest the only reason I continue is because of my family at this point. Left to my own devices it would a resounding hell no.
Good luck with your decision sweet. xoxoxo