Stop the bus I want to get off.

Thanks @iserbrown. Ill have a read and thanks to @GorgyS and @Cath62 also. 

I exercise a lot. Ive altered my diet. I have a personal trainer/coach.  Yes, i manage my medical people. When I try to talk about drugs and their impact my gp changes the topic and my oncologist gets defensive, my surgeon is emphathetic but he reports to the onc. Note that I see my gp monthly for zolodex. 

I have strarted to get stress incontinence due to low estrogen. Why cant i talk to my gp about that?  I get that its hard for them when they want to give solutions but there may be none.

Ive been trying without success for 4 years to reduce my weight. I have gained some muscle, i have lost like a few cm from my waist but its incredibly hard work for a tiny impact. Im only 52 and i dont want my weight to create future health issues.

But maybe worst of all is the lack of energeticness when i get out of bed and the inability to have emotions which arent dampened. My nether regions are like the sahara this morning!

 

https://www.bcna.org.au/resource-hub/articles/fatigue/

Hopefully the link above will help you through!  It's a so and so!  I've just passed the 9 year mark and suffer all you mention on and off!  Bone pain in the legs is the most debilitating.....yes I am whinging now!

Take care

@MicheleR. You have to vent, and most of us do this on this network. From day one of my diagnosis, I realized that no one wants to listen to what we are going through—not doctors, family, or friends. It does not mean that they do not care. Doctors, including specialists, are focused on our physical health, which they address with medication. I fully agree with Cath62. I, too, am a project manager of my health and well-being from the beginning of this journey and probably for the rest of my life. Unfortunately, drugs seem to be the only option, but fortunately, they are available. We need to take care of our health through exercise, healthy eating, and other complementary programs. It is not easy. I always have to compose myself to keep going. Most of us have the moments to "get off the bus". Take care 

Treatment is very hard sometimes and for some all the time. I think the drs aren't there to listen to how hard it is but they do know it's hard. They can't take on that supportive role. I expect empathy but not emotional support from them.

  Can you imagine how hard it would be if drs had to take on providing support other than the drugs etc. With the number of patients they see they would be so depleted emotionally they would be unable to do their doctoring. 

My view of health practitioners is this....firstly I am the project manager of my health and I engage who I need to manage myself. I use the GP as my prime source of care and to access specialist such as my oncologist (I live on permanent treatment) and dermatologist, psychologists, physiotherapy etc.

 However my gp can't solve everything so I also turn to other strategies to cope with fatigue such as exercise like walking and yoga. I get acupuncture too every now and then for immune and stress support. I practice meditation and mindfulness to help. In terms of weight management, I went keto and it was amazing and I feel better because of it.

I think there is much we can do to help ourselves too bur for sure I totally get that at times it is super hard.