Hi sister,
Its ok to vent! I think there are a few things going on here.
Firstly, unless you have had breast cancer, you can’t ever REALLY understand what a person with BC is going through.
Secondly, when can you say you “ had” BC.Is it when you have had your surgery , chemo and radiotherapy?What if you are hormone positive and are taking the tablets for 5 years , maybe more?
Thirdly, because non BC people don’t know exactly what we are going through, sometimes they don’t know what to say or do and their comments may come across as clumsy , inappropriate , thoughtless or in extreme cases, cruel.I had a single mastectomy and a person I thought was a friend said “ why didn’t you get the other one off “.I actually said “ because I’m an optimist”. After that I went home and did a bit more crying.
Fourthly, following on from that point, most people have no idea what is involved with surgery and treatment , I know I didn’t.I was completely shocked with the level of pain I felt following the mastectomy and how the painkillers mucked with my head ( not to mention the general cognitive impairment from the shock and emotional turmoil of diagnosis).So when they expect you to have “ bounced back” after surgery or other treatment, it’s hard not to want to punch them.
Fifthly, I think it’s ok to say “ I’m not well and I can’t do that “ , I have learnt to say “ no” to a whole lot of things and felt absolutely zero guilt about it.IP
I also think a lot of people are very private and don’t want to draw attention to their BC , so this helps perpetuate the view amongst some that people who talk about their problems with BC are malingerers/ whingers.
Everyone is different but that doesn’t make it any easier when people expect you to “be positive “ when you are grieving about your earlier cancer free self.
I actually liken a diagnosis of BC to grieving the loss of a loved one , and no one ever asks you to be “ positive” about that.
it is great that this network exists for venting, supporting, informing , chatting and just “ being”.