I'm hearing you, @Barks34 I'm three years out from my recurrence and just starting to get a grip on my life again. It absolutely sucks and I don't think that anyone who hasn't gone through the whole miserable performance has any idea what it can be like.
Lack of services, and inconsistent access, in regional areas makes everything so much harder. I've got a monster folder that has all my tests, appointments (past and present) and a spread sheet summary of previous treatments and issues in it. It can help to be able to pass that spreadsheet over (providing your health professional has the time to read it) so you don't have to spit the whole shitty narrative out every time you speak to someone new. Hang in there, it does get better, but it's a long haul. Mxx