Osteoporosis
Hi I'm 58 and 6 years post diagnosis and 4 yeas post treatment for HER2+ BC. Had chemo and radio plus Herceptin. Had two bone density tests during treatment half way and at end. There were some sign...
Forum Discussion
Hi @CassieB, I'm in a slightly different category to you. I had a Er/Pr +ve Her2 -ve BC. I had chemo, surgery, radiotherapy. I then started on the AI path 4&1/2 years ago. Baseline and 2nd bone density scans excellent, 18 months apart. The 3rd one, another 18 months later showed substantial loss of bone density in my lumbar spine, into the osteopaenic range, so my oncologist started me on Prolia every 6 months. There is the suggestion that prolia may also play a role in preventing bone metastases, which was in part why he strongly recommended it over Aclasta.
I've had 3 doses now. After the first one, I had dreaadful bone pain a few days later, for a week to 10 days, to the point of taking endone a couple of times. If it had been the same or worse 2nd time around, I don't think I would have been keen to keep going. However, I had no reaction all to the 2nd and 3rd doses. I'm due for anotherbone scan soon, so will be interesting to see the results. I'm really hoping not to need to keep going with it, as I don't fill the requirements for PBS subsidy, so it costs quite a bit. However, if I have to, I'll keep going
I've had 3 doses now. After the first one, I had dreaadful bone pain a few days later, for a week to 10 days, to the point of taking endone a couple of times. If it had been the same or worse 2nd time around, I don't think I would have been keen to keep going. However, I had no reaction all to the 2nd and 3rd doses. I'm due for anotherbone scan soon, so will be interesting to see the results. I'm really hoping not to need to keep going with it, as I don't fill the requirements for PBS subsidy, so it costs quite a bit. However, if I have to, I'll keep going