I am so sorry to read of your journey so far @FionaM and also sorry the helpline wasn't available to you when you rang xx That was a bummer, as it takes guts to call the Helpline x. - I am sure they'll be able to give you wonderful support. Please ring back tomorrow, between 9am & 4pm (so you beat the 'cut off' for the weekend.) 1800 500 258 - or you can arrange a 'call back'.
https://www.bcna.org.au/helpline/#:~:text=Contact%20the%20Helpline,to%20get%20a%20call%20back.
Whereabouts are you? (You can add your 'general area' to your profile) as we may well have members nearby who may be happy to meet up for a coffee & a chat xx. Also other members may be able to point you to specific medical professionals who may be able to help you with your meds etc. There are meds available to cut down the hot flushes etc ..... @Blossom1961 maybe able to help here!
Having your partner diagnosed with Cancer is a double whammy, too - sadly, I lost my husband nearly 2 years ago to a nasty cancer, so I know how tricky it can be - and it really can muck with your brain too. xx. That is Great that he is going OK. Do you 'share' your Onc with him? We did - so it made it much easier just dealing with the one Onc for both of us xx
Please talk to your Onc about your side effects - I swapped AIs 3 times - the 3rd one being 'the one for me' with less side effects!
In one of your earlier posts, I mentioned that I am on 'the good oil' - ie Medicinal Cannabis Oil & it has definitely taken the edge off most of my side effects to the meds. It is totally legal to take in various 'strengths', so feel free to ask your Onc about it - and if they are not able to help you with a script - there are plenty of online clinics that can help (some do tele-health appointments bulk billed ...)
As @Afraser says - be kind to yourself. Try not to take on EVERYONE else's battles ..... Look after yourself first, then you'll be able to look after your hubby & family too xx. Contact http://www.otisfoundation.org.au too - to see if they may be able to give you, your husband and family on a 'holiday' within your state xx. I had one with my husband and brother & SIL at Thredbo & it was a wonderful break.
take care, keep in touch xx
