Forum Discussion
Louise64
5 years agoMember
6 months Post DCIS now heart failure at 57
Went for 6 month checkup at radiology oncologist - now have been diagnosed with severe heart failure and need aortic valve replacement. I can’t believe after having nothing wrong for 30 years- only 2 caesareans in 1990 and 1992 ... here I go again. Any suggestions for support groups like this one? Once again - I’m not telling anyone but my sister, daughter and school principal... I know so many worse off than me .. more surgery.. more time away from work... more frustrating than worrying.
26 Replies
- Louise64MemberNo chemo- just bad luck. At least I’ll have scars both sides now
- arpieMemberGosh, that's a bugger, @Louise64! Did you have chemo at all? I know that some chemo treatment can cause heart problems :( Sending heaps of good vibes to help you thru this one xxxx
- LocksleyMemberSorry to hear of your "speed bump". So many things are thrown at us on this roller coaster. Sending you love and positive thoughts.
- Cath62MemberWishing you the very best @Louise64. Sometimes those bumps go on a bit more than we like. Sorry you have this one. Sending love ❤
- lrb_03MemberIf you go to anything, go to the heart foundation website. I too just googled and came up with
https://www.heartfoundation.org.au/conditions/heart-failure
Also sending you a private message - Jen2019Member@Louise64, i feel for you and life sometimes throw too many curve balls at us. But, you seem to be full of courage just like your mother. Hang in there and you have the BCNA community rallying behind you. I may not know exactly what you're going through but I sure can lend you an ear if you need one. :)
- Louise64MemberNo - chose not to go on anything yet.
- HallaMemberThat’s awful news for you @Louise64 and only 57, what a double bummer! I suppose it’s good that you have a team looking after you to identify it early and do something about it. My oncologist mentioned yesterday that Aromatase Inhibitors can have a bad effect on heart health, are you on those?
- Anne65Member@Louise64 So sorry to hear of your "speed bump". My first thought also, was it may be from the radiation but sounds like they have ruled that out. I just googled https://www.heartfoundation.org.au/helpline . They have a Helpline 13 11 12 & it says that part of their job is putting you in contact with a support group in your area so I reckon that would be a good place to start. If they're as good as the staff at BCNA & Cancer Council, then Im sure they will be able to help you. Good luck & I love your positive attitude!! xx
- PV123MemberHi @Louise64Your mum was very wise to call it another speed bump. My father had a heart valve replaced at 70 and lived a very healthy life till the age of 91. His life was not affected in any way.Wishing you the best of luck and a speedy recovery.