Forum Discussion
Louise64
5 years agoMember
6 months Post DCIS now heart failure at 57
Went for 6 month checkup at radiology oncologist - now have been diagnosed with severe heart failure and need aortic valve replacement. I can’t believe after having nothing wrong for 30 years- only 2 caesareans in 1990 and 1992 ... here I go again. Any suggestions for support groups like this one? Once again - I’m not telling anyone but my sister, daughter and school principal... I know so many worse off than me .. more surgery.. more time away from work... more frustrating than worrying.
26 Replies
- Louise64Member:)
- LocksleyMember@Louise64 sending you a hug and wishing you a speedy recovery.
- June1952MemberI always tell myself that my man battle scars are just proof that I won over whatever tried to kill me.
All the best for what lies ahead. 💖 - arpieMemberHaha ... I had to have my gown ‘front opening’ as I was face down for my Rads ... and didn’t realise I was Flashing the guy sitting opposite me in the waiting room, as it had ‘opened up’ when I sat down and I hadn’t realised! LOL. He would have seen my belly rolls too! LOL It didn’t worry me too much as I’d gotten used to dropping my top in front of complete strangers in the previous months ..... so I just laughed it off! So did he!
Wear your scars with pride, @Louise64 ... it shows that you are a survivor xxx - Louise64MemberThank you. It’s just a little bit funny after bc surgery & radiotherapy I’m the quickest undresser- but have to remember to put gown on opening at back! But back to the best front opening bra- Amoena Hannah from David Jones $39... again - heart bypass, breastbone crack & wired - just another bump in the road.. but sad my magnificently healed scar from last July just looking invisible- now this . Battlescars ❤️
- arpieMemberI had severe palpitations last year @Louise64 (I seriously thought I was having a heart attack!) Just on Beta Blockers now ..... no chemo for me either.
All the best with your tests & surgery. - Mummy0297MemberSorry to hear about your new diagnosis @Louise64- wishing you all the best - stay strong and reach out for help if you need it xx
- Louise64MemberSorry @arpie - no chemo. Undiagnosed murmur that has surfaced. Luckily I’m really good at getting tests done and radiotherapy makes us the fastest dress/ undressers for X-rays /ultrasounds/echocardiograms/ ECG/ angiograms... sense of déjà vous. Surgery booked - another 3-6 months off work. Ce la vie 🥰
- Louise64MemberI’m on that path - left breast surgery and radiotherapy- 6 month check up in morning - echocardiogram and heart failure diagnosis in afternoon. Great doctor so now angiogram then valve replacement... life goes on 💗💗
- Stormbird63MemberI was diagnosed with a congenital faulty aortic valve with a large aneurysm to boot. This was found during the work up to left breast cancer 2 years ago. Went through lumpectomy and radiation then one year later open heart surgery. It was a roller coaster of a recovery but would do it all over again compared to the mental torture of the potential presence of cancer hanging over you for the rest of your life!Check out the Australianhearthealth.org.au or heartstart. All the best