Forum Discussion
12 Years Cancer Free :)
Hi Lovely Pink Ladies. Thank you for reading my post today!!! Well, I am now officially 12 years cancer free in late August 2023 but I have had a few scares along the way as we all expect may hap...
Holy Moly, @Mia1965 - they could DEFINITELY write a book about you & your health issues (AND a movie!) ..... It definitely sounds like a lot of the issues may be related to the autoimmune bit ... and polymyalgia is a very broad spectrum 'diagnosis' too & not very pleasant either ... yeah, any type of arthritis is a pain ... literally!
Your Covid could definitely be affecting your nodes - so maybe mention that again to your Onc/Ultrasound person ...... Does your Rheumy guy speak with your Onc re his own diagnosis & treatment of you, so they're both not trying to cover the same areas, twice? If your health details are on MyGov, your Onc should be able to access your Rheumy guy's notes, i think?
It is not unusual to get a heart defect from some sorts of BC chemo .... they don't always tell you that it can happen either :(
Yep, Prednisone can be a double edged sword - I was on it for a while before my BC diagnosis ..... and I hated the threat of weakened & broken bones ... so only take it when absolutely necessary & for the shortest time I can get away with. Mind you ... if they can come up with an effective, non damaging low dose - I can really see it as the drug of the future re AI side effects ...... but the trade off currently (broken bones) is not good.
Every day we wake up is a good one (vs the alternative) so try & get out there & enjoy every bit of it that you can xx
take care and all the best for your future checks xx
Your Covid could definitely be affecting your nodes - so maybe mention that again to your Onc/Ultrasound person ...... Does your Rheumy guy speak with your Onc re his own diagnosis & treatment of you, so they're both not trying to cover the same areas, twice? If your health details are on MyGov, your Onc should be able to access your Rheumy guy's notes, i think?
It is not unusual to get a heart defect from some sorts of BC chemo .... they don't always tell you that it can happen either :(
Yep, Prednisone can be a double edged sword - I was on it for a while before my BC diagnosis ..... and I hated the threat of weakened & broken bones ... so only take it when absolutely necessary & for the shortest time I can get away with. Mind you ... if they can come up with an effective, non damaging low dose - I can really see it as the drug of the future re AI side effects ...... but the trade off currently (broken bones) is not good.
Every day we wake up is a good one (vs the alternative) so try & get out there & enjoy every bit of it that you can xx
take care and all the best for your future checks xx